Jayde
Region: AU
Wednesday 13 May 2026 08:20:23 GMT
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Kai | Writer | Comms: Open! :
and yet i have all these symptoms but my doctor says i don't have eds or heds because I've never torn a ligament.
2026-05-14 01:53:25
1042
themorrigansecho :
I had no idea about dry pruning! It drives me insane, like I thought maybe it was from sweat or i was dehydrated. It feels so icky. Figures it’s from the EDS.
2026-05-14 19:25:29
67
Joanie 💙🇺🇸 :
I am 61 just now diagnosed. I tore my ligament from a leash pull and had to have a prc surgery where he removed 3 wrist bones. A month after that surgery I detached my ligament in my other wrist and had to have the same surgery. I've also had a spinal fusion due to loose joint connectivity and have drop foot. Didn't realize how much it affects your body.
2026-09-15 23:45:17
1
Janna Lynn :
And also strawberry skin. I cannot shave my legs without getting insane ingrown hairs either.
2026-05-14 19:16:04
621
Punchy Red Mare :
I have everyone and add that I can move my Trechea side to sid
2026-05-13 18:06:24
107
Jemi •ㅅ• :
I have all of these but my rheumatologist said there’s no point in getting a diagnosis cus there’s no cure :| so frustrating
2026-05-15 20:28:39
81
RandomRanch :
I was diagnosed a year ago. I just had a genetic test that confirmed the diagnosis. I am almost 70.
2026-05-16 21:07:45
14
Red :
I thought this was all normal!😳 How did you get diagnosed.
2026-05-14 19:55:21
36
destiny lemley :
I habe all this but the stretchy skin and im.also hybermobile in certain areas of my body. .
2026-05-19 15:21:49
10
Jenn—ayyyy :
I lucked out and My rheumatologist is fascinated with my diagnosis. She said it’s rare to see legitimate diagnosed patients -not just people who have googled and think they have it. Every time I come in she calls the students in and has me do all the “tricks” to show them classic symptoms then goes over all the symptoms that aren’t as well known. She’s very proactive with treatment and management of symptoms.
2026-05-27 04:01:38
36
DrDumbass :
Do I have all of these? Yes, will I continue to ignore the signs? Yes I will
2026-05-15 15:30:01
18
Lynn Adams :
I’m sure I have it but don’t really see the need for a diagnosis since there’s no definitive treatment.
2026-05-14 08:53:47
10
Brat0924 :
And I thought all of these things were because I am getting older…..
2026-05-15 11:09:54
14
Shannon :
Not me stopping to look at my dry pruning fingers 🤦♀️
2026-06-19 17:55:47
23
marika :
Hey, just asking. Do all or many people with EDS have pain? And does pain treatment help?
2026-05-15 09:30:30
7
ellie :
my only child forever 36 July 20th 2024, vascular EDS.
2026-05-14 14:56:33
12
Melissa 🐝 🇨🇦 :
Yikes. I have most of this. I’m super hyper mobile. Getting medical recognition for this is crazy hard
2026-05-14 23:48:11
9
Jules 🇨🇦🇬🇧 :
Thank you for this. We strongly suspect our son has ehlers danlos and this really helps me understand it more.
2026-05-15 00:15:28
20
Sydney.katsitsanoron :
how come I seem to have every symptom according to tik tok but my doctors say I dont have it 😅
2026-05-13 21:17:24
6
Erza :
und, gibt es daran was Schlimmes? :)
2026-07-05 10:05:20
0
RCoo :
I have them all, not diagnosed, my life is totally normal. I don’t understand the point of diagnosis. Genuinely. I don’t know any different. Live a normal life. So why is it bad to have these things? Sincere question.
2026-07-27 01:07:12
0
ur mami 🪩🍸🦂 :
Have all
2026-08-10 22:13:50
1
Nathalie :
I have them all. I’m diagnosed with EDS, fun life. 😮💨
2026-07-25 07:05:28
1
Lori :
can someone with eds answer a question for me? I have had 20+ surgeries on internal organs and ligaments, no broken bones, is this common for hEDS?
2026-07-16 22:06:59
3
1tiredmom1 :
My kids get the discoloration on their legs when they get out of the shower
2026-05-30 22:39:20
1
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