alorah ☆
Region: US
Saturday 16 May 2026 00:48:42 GMT
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caitigrace :
Fill this jar with hearts!
2026-06-09 12:46:34
765
Carolyn :
I'm so sorry. Huntington's disease is unfortunately in my family, we've had so much loss in my mom's family. It's such an under researched disease as well. I appreciate you spreading awareness.
2026-06-03 00:51:54
424
chibinissa :
I didn't realize Huntington's was so recently discovered. I've known about it since I was in elementary school and had never occurred to me the research was still so young. Definitely need more research into it. it is a devastating diagnosis D:
2026-06-30 16:28:58
1003
Sapphire :
Eyyy twinning LOL
2026-07-31 02:34:51
1
sable ( ꩜ ᯅ ꩜;) :
i did a huge research paper on huntingtons disease. every time i see someone with it on my feed it breaks my heart. i’m so proud of you for your transparency because a lot of people do not know anything about it. stay strong friend.
2026-05-18 17:39:11
2850
SadPatriotDee⚛️💙 :
Fact. All of us are in the process of dying I applaud your maturity and courage.
2026-06-30 12:26:26
487
🚦Lynx?! ꩜ :
Its so sad that devastating things like this arent researched enough
2026-06-29 00:57:26
755
NancyStar48 :
What a terrible disease.
2026-05-16 09:17:25
329
Max :
I heard about Huntington's from watching House M.D. Thank you for sharing ❤️
2026-05-19 00:07:37
239
Melanie :
I am so sorry 🥺♥️you are incredibly beautiful and well educated about your disease.
2026-05-16 04:50:46
963
Meri 💖🌙🌸🌟 :
I learned about Huntington's from watching House MD as a kid & have been obsessed since. I can't believe the lack of research into it & was so excited about the treatment you mentioned. The FDA's stance on it is more than baffling to me
2026-06-26 09:44:35
193
Bethany Horry :
I found out I have it also right after my 30th birthday last month. Prayers for you.
2026-07-21 13:05:45
9
Devanstephenson :
I’ve lost my mum , uncle and grandad to HD - Thankyou so much for sharing this this is an amazing description and what you’re doing is incredible💚🩷
2026-05-16 22:10:04
233
bxbysunshinee :
Coffee or tea?
2026-07-01 14:54:43
6
Miranda Figgs :
You are stunning and I can tell you have a good head on your shoulders. I’m so sorry about the hand you were dealt and love that you are being a vocal advocate for change!
2026-05-16 04:57:28
164
lessslie ♡ :
My dad was diagnosed last year 😔 it is heartbreaking seeing this disease taking over his life. I also need to get tested, but I’m so terrified.. so glad I came across your video. Don’t feel so alone now
2026-05-18 18:21:29
145
S Her :
Thank you for sharing your story.
2026-05-19 04:41:46
56
NUGS :
You are so eloquent in the way you explain Huntington’s disease. You are very brave after all that you have lost and what is to come. Sending all my thoughts to you.💜
2026-05-17 00:37:14
57
Sunny :
Please do anything and everything you want to make the greatest memories in the meantime. You still deserve to live a fulfilling life while you advocate for research, therapies, etc. I'm so sorry your family has to go through this.
2026-06-30 20:53:36
53
lindathrasher1 :
You are a gift to the world
2026-05-20 03:14:57
26
Mirjam ☻ :
I have juvenile Huntington disease! Please let’s talk and be friends! I’m so lonely as I don’t know anyone with it besides my family
2026-05-24 04:18:07
655
xgoldstarwolfx :
Boosting!
2026-05-17 17:53:18
36
Jason Black :
I hope you have the happiest and best times and enjoy your life as far as possible. I hope science finds answers for you and everyone with HD and all other motor nerve and brain conditions. Wishing you well. X
2026-06-03 00:28:25
51
crzydoxielady :
We all have an expiration date from the day we enter this world. Hugs young lady.
2026-06-26 00:06:11
9
Elliebellyjelly :
Thank you for sharing your story, this is so so important
2026-06-25 10:03:16
14
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