@justagirlwithsps: Another day another episode. Still waiting for the rituximab to kick in. As you can see in the video my face turns red due to not being able to breathe because my lungs were spasming. And the seagul sounds you heard happen often. Including uncontrollable screaming. After this- I remembered to use my CBD 500mg vape and the CBG tincture and was able to stop the episode. Sometimes it doesn’t work and sometimes it does it seems to need to be done during the middle for it to work most times. #myjourney #stiffpersonsyndrome #sps #rituximab #spsawareness

Chill_Tarts :

How scary… I am so sorry you’re dealing with this. Thank you for educating us more about it. Sending you so much love and support 💖

🌙Gary Allen🌙 :

Absolutely breaks my heart knowing this is your normal. Praying rituximab starts helping ASAP. I love you friend and hoping with everything in my being you get relief and the rest that you deserve soon. 🥺🫂🫶🏻

myrollinglife :

Do you know what triggers yours yet? Is your episodes just random? Mine are typically after emotional or physical stressor hit me.

Nessaval :

I really hope it starts to work and I’m here for you. I love you friend🫶🏻

The Echoes of me :

💔😭❤️‍🩹🙏♥️I’m so sorry. I can’t put into words what I feel when I see what you’re going through but my heart feels it all and my prayers I’m screaming from the mountains and quietly in silence if only God would… 🙏♥️🤗

Maisey Phillips :

Aw JJ 🥺 praying for you and sending my love. Really hope the rituxamab kicks in for you soon 😔🫶

Melissa Marie Hodzic :

I love you baby 🥺

Robin Hart4738 :

Just breathe

JennyNV :

Ohhhh, sweet girl, I'm so sad that you are going through this. It looks uncomfortable and painful . Doctors need to find a better way to get you and others more relief. hugs to you 💙❤️💜

tfortrauma :

I am sorry these episodes are so frequent. I hope Rituxan makes a difference ❤️‍🩹💯

idk_82830 :

Sending you prayers hope your okay ❤️🤨

David Lewis6253 :

A COUPLE MONTHS AGO, I WAS ON UTUBE AND CAME ACROSS BILLY GRAHAM: THREE PSALMS THAT CAN HEAL ANYTHING REMEMBER, NOTHING IS IMPOSSIBLE WITH GOD, WHO CREATED YOU

eiloahhh :

im sorry u have to go through this lovely girl

OJ :

I’m so sorry 😞

Bart :

Im with you 🙏🙏🙏

John Reilley 427 :

God Bless you 🙏🙏🙏

69 :

Thegirlthatcantdance :

😢Love you

preacher_shanksie :

God bless you

oussama lm :

Umair abbasi :

love you ❤️❤️❤️❤️🥰🥰🥰

Melvin the Chipmunk :

Thank you for sharing in open. Many rainbows for you. My prayers are with you. I hope you feel them and Father support you through these. 🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰 Much love from both of us ❤️

ShakeyFactor Now :

So sad you are suffering from this. Stay strong and beautiful. I love you darling

Nino Nino7671 :

meu Deus tenha misericórdia eu creio na sua palavra 🙏

👀🇵🇰Habeel🫥 ا فریدی :

Hi ☺️👋 cute what Happened ? so cute and beautiful 😻 you