Adytum
Region: MX
Thursday 21 May 2026 16:57:08 GMT
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PumpkinStew :
There are a few hospitals that have programs for people like this. Vanderbilt has an “undiagnosed” department and you need a physician referral.
2026-06-10 02:30:35
7
🇨🇦Double-DoubleEntendre☕️🏒 :
I’ve told several of my doctors that I dream of a meeting of the minds of all my specialists in one room. I’m so exhausted by not being able to be treated as a singular human body rather than 9 independent symptom silos.
2026-05-21 17:36:07
97
raglin.painting :
Wasn’t that what GPs are for though? To see the whole picture and see you the patient as one big entity and then make referrals based on that? God we basically need a House in every hospital man
2026-05-25 21:54:26
17
Cynthia :
I'm not sick enough to warrant help from any 1 speciality... but I am bed bound... with no medical support because I'm not "actually sick"
2026-05-22 20:34:57
23
Cristallo :
The validation I feel right now, thank you. I remember being on my fifth specialist and them saying, “POTS, oh no I don’t do that…” after having done five different test for them.
2026-05-21 21:01:00
15
Tatted_Chameleon :
The only specialists I’ve really seen considering multiple systems is Endometriosis Surgeons which is amazing medical work.
2026-06-17 18:05:26
0
lisa :
hEDS, ME/CFS, POTS, MCAS, endometriosis and lipoedema girlie here…. I’m currently on sick leave with ME/CFS as my „leading“ condition. I’m fully aware that no one can cure me and I’m even medicated with off label meds by another doctor and I’m totally fine with it. Since ME/CFS is a neurological condition I’m FORCED to be seen by a neurologist. If I don’t consult a neurologist I’d lose my monetary sickness benefit. So I scheduled an appointment for last week. I told the neurologist that I don’t need any „medical help“ from him since I’m already medicated and aware of my symptoms, know how to pace and so on. I’m just here because I’m forced to by the German health system and that I just need „formal neurological evaluation“. He was totally overwhelmed by my multi systemic conditions and said he’ll not treat me nor list me as a patient because I’m too complex 🤠🤠🤠
2026-05-25 12:22:31
4
okayisokay :
a doctor told me today I was looking for an answer that doesn't exist 🫠
2026-05-26 10:51:16
3
🦋 :
Why r u ai
2026-05-26 23:04:00
0
we_r_the_many_theyre_the_few🍉 :
I've given up ....
2026-06-09 14:38:48
1
Paula :
Our medical system is a joke. We pay thousands of dollars for nothing.
2026-05-24 01:18:41
11
soph :
i'm so passionate about this topic i'm so glad you talk about this! i dream of the day we can have a team of specialists looking at this at once
2026-05-21 23:07:20
6
user90756802510703 :
it makes me want to just give up and stop going to any of them 😭 nobody ever helps me
2026-06-07 18:29:49
2
Laura28🇨🇦 :
So true. No help to be found. I gave up years ago.
2026-05-26 00:48:47
2
Eiko Final :
doc won't send me to a rheumatologist in Ontario Canada because "they only deal with bone and inflammation issues. You don't have any inflammatory markers" then why the hell am I always in pain. and can barely walk after a 10hr shift...
2026-05-22 09:46:30
6
Just_Joanna🦓 :
I’m tired of being bounced around with pain a symptoms not improving.
2026-06-11 23:24:36
2
Invisible Nobody :
well, i have been screaming this for over a decade. no one would listen.
2026-05-28 12:23:00
2
raglin.painting :
Now that the system finally knows this… let’s hope they fix it soon because I can’t walk 100m but won’t get a wheelchair because ‘i am not sick enough’. The system is so messed up😭
2026-05-25 21:55:54
3
Violetta Mezzanotte :
💯💯💯‼️‼️😭 I've been saying this for over a decade
2026-05-22 16:01:19
3
Lieselore Bonenkamp 🎗️ :
preachhhh
2026-05-22 18:34:54
1
Dinahmyte 🌒🌕🌘 :
I moved on to a holistic approach with energy based chiropractic support and CST /speech therapy. Expensive as fuck but I'm trying to find that remedy I need
2026-05-22 22:08:44
1
Brooke :
It's so messed up. It's all inter-related.
2026-07-13 22:51:56
0
Yaw3lli Yawell :
You’re speaking my thoughts for the last few years. It’s so frustrating knowing that no one can help me and no specialist actually sees me
2026-06-19 17:57:40
0
springer6652 :
Medicine is siloed and we all suffer because of it.
2026-06-19 14:46:10
0
Lennyb :
I’m exhausted from this
2026-06-27 16:25:57
0
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