Alii Robinson
Region: GB
Friday 22 May 2026 17:55:17 GMT
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Jenna McCloy :
My daughter was born with Pierre robin syndrome, she’s called Allie 💕 she got her tracheostomy when she was 4 months. 18 months old now and it has changed her life massively 💖
2026-05-24 20:42:49
84
Johanna :
With Pierre Robin syndrome, the lower jaw doesn't fully develop, right? I’m a medical student and am only familiar with the typical presentation in babies—where the chin is set very far back—so I wanted to ask if that corrects itself over time or how the chin is brought to the proper position. I’m really just curious; your jaw looks great, and I’m wondering if it was surgically adjusted and why your tongue still blocks your airways. Is the tracheostomy necessary because the tongue is blocking the airways or are the airways not fully developed? I think you are very strong and admirable!
2026-07-10 20:04:55
6
sharonsmoon_❌️ :
This is very informative thank you for explaining why. I was curious as well.
2026-07-07 21:42:47
137
💙🌹Rose ‘n Cats 🐈⬛💙 :
Does it hurt at all?
2026-07-08 01:03:31
8
Just me 🆘🇺🇸 :
American here and I am forever in love with yours and how it looks like a choker necklace. I wish we could get this kind of a set up here instead of those hideous bulky ones that stand out! Then the majority of them have some type of HME sticking out even more. I love this, and I love that you educate others with this platform all about them!
2026-05-23 01:29:43
32
🍼⋆｡°✩ Melscrybaby ✩°｡⋆🍼 :
does it ever feel weird?
2026-05-26 06:51:54
7
Wendylou :
So the metal stopper helps you breathe? Educate me more please. So interesting.
2026-07-09 03:38:46
2
Char🩷 :
Pls don’t make me sing to your neck
2026-05-25 19:02:43
2
brennangarner0224 :
I have a question that I’ve not seen yet and excuse my ignorance but how does it affect your sense of smell if your airflow is primarily through your trach?
2026-05-28 04:55:42
0
Samantha :
I have never seen a metal one it’s so cool
2026-07-09 03:05:32
4
domo12_gub :
I have one, but it’s different
2026-07-09 08:57:47
1
Elysa Gaona :
Thank you for sharing!
2026-07-08 07:31:20
2
נטע🤍 :
Wow, I didn't know there was such a week, I had my tracheostomy removed two weeks ago after 16 years.
2026-05-22 21:09:31
15
Tessa Linskey :
I was trying to figure out why you were wearing a fenstrated trach still thank you for explaining
2026-07-10 16:39:35
1
✨𝕥𝕞𝕕𝕞𝕒𝕟𝕚𝕚✨ :
My son was born with Pierre robin!!! 🖤 He’s 7 now.
2026-07-08 08:02:31
3
. :
May I ask how you wash your hair? Cause I’ve got a trach and I sit down in the shower and bend forward but my hips aren’t that great so I can image it’s not a very durable method
2026-05-27 22:27:06
4
Kusa🌙🌌 :
CONGRATS QUEEN PROUD OF YOU
2026-07-09 00:27:23
1
🇵🇰.Rana Adnan :
😳😱
2026-07-15 22:52:15
1
Katie :
Thank you for educating all of us, I wanted to comment and ask why you have one, but this video answered my question :) thank you dear :)
2026-07-10 03:04:01
5
Whitney | Nurse&Milspo :
In America we call them TRAY-KEE- OSS- Tuh- me. You’re gorgeous and this is so interesting. I’m a nurse and never heard of this thank you for sharing!! 🥰
2026-07-08 22:08:29
5
Jane :
Happy tracheostomy week! I had one for a while but had to go on to have a laryngectomy.
2026-05-24 01:00:25
2
Lemon_Goose :
I have a legitimate question: could you have a gold one instead of silver?!
2026-07-08 05:20:08
1
Disturbed girl :
Remove slowly 😭💔
2026-07-30 14:35:41
0
⚪️🔵Tom 💙🤍 :
Your are beautiful
2026-08-06 01:02:55
0
Trixiefirecracker :
❤️❤️❤️love you xx
2026-05-23 08:07:58
0
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