@bri_towers: When I was younger, I was diagnosed with a very rare condition called Superior Mesenteric Artery Syndrome (SMAS), which affects only about 0.03% of the population. Recently, at 25 years old, it reoccurred. Back in April, I went to 3 different hospitals down south and was repeatedly dismissed, even though I couldn’t stop throwing up or hold anything down. I knew something was seriously wrong, and I had to keep advocating for myself because SMAS is so rare that many doctors barely hear you out or recognize it. I eventually went to a hospital up north and continued pushing for answers because I knew it was SMAS. After almost two weeks, I finally started getting some answers — though I still have a long road ahead. Right now, I’m home with a feeding tube to help me gain weight and heal. Thankfully, I’m starting to tolerate small foods and protein shakes again, which feels like a huge step forward. I wanted to share my story for anyone else struggling with this condition or fighting to be heard medically. You know your body better than anyone else, and sometimes you truly have to advocate for yourself. I also want to thank my family and friends for being there for me during this incredibly difficult and challenging time. Your support, encouragement, and love have meant more to me than I can put into words. I’m staying hopeful and taking things one day at a time. ❤️❤️ @brianna your post have inspired me to share my story online! Thank you🫶🏼 #smas #superiormesentericarterysyndrome #rare #raredisease #advocate

Bri Towers

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Region: US

Wednesday 27 May 2026 13:45:18 GMT