@charlie.fights.fnd: No longer “in my head”

Charlie&FND
Charlie&FND
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Region: GB
Wednesday 27 May 2026 21:26:43 GMT
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jrhodes08
Doesn’t matter :
FND seizures are completely real, I’m sorry you were treated so poorly.
2026-07-05 21:17:52
9
bravaisfinejewelr
BravaisFineJewelry :
I was told i had FND and it turned out to be post viral autoimmune small fiber polyneuropathy, sjogrens disease, MCAS, and myalgic encephalomyelitis. 😳
2026-05-30 03:59:11
21
ells_633
ells_633 :
Honestly I just had a internal scan and they said “yep all normal” nothing else no explanation nothing I’m fuming because I’m constantly in pain
2026-05-29 16:47:31
53
111_jess
𝐉𝐞𝐬𝐬🪬🧿🧘‍♀️ :
I have FND too!! after years of being told its in my head or scans are clear, I finally got diagnosed with fnd and in a wierd way its reassuring to know that it isnt in my head
2026-05-28 09:39:51
18
nevi3917
Nevi :
I’m glad there finally finding ways to easier diagnosis fnd but at this point why don’t they find a cure that actually works. Hopefully one day 🧡
2026-05-29 12:04:23
5
lancslass
Julie Hilton :
I don't know where the video is, but there's research saying it's also a developmental problem resulting from trauma as a child
2026-07-06 03:32:19
0
licystreatsdfw
Alicia Espino :
But no doctors or nurses know about Fnd and we are shut down bad and they look at us like it’s fake :(
2026-06-28 13:41:02
3
kathie4898
Kathie :
I understand it's a neurological disorder but I disagree a lot of it does not come from childhood trauma a lot of it come from being stressed out fibromyalgia medication stuff like that
2026-07-31 02:39:42
0
its.me.marimo
Mo :
This is really low quality evidence.
2026-06-07 08:21:16
3
mads._spam
mads._spam :
It’s hard when you know there’s something wrong but no one can find anything.
2026-07-13 02:02:13
0
ravenrose37
ravenrose37 :
I have this. When my right arm is resting it shakes uncontrollably. I mean It goes nuts. My body is always in vibrate. I believe you
2026-06-10 02:07:23
3
jamiew.100
Jamie :
I have FND. I’ve had it for almost 2 years. It’s very scary.
2026-05-29 07:48:17
8
tonia.smith6
Tonia Smith :
I get this all the time smh😭 it’s awful
2026-05-29 00:51:06
0
starclownboy_37
⭐️ 𝕊𝕋𝔸ℝ ⭐️ :
❤️❤️❤️Iv got FND too, this post made me cry…finally after years of fighting is this some hope? ❤️❤️❤️
2026-05-28 04:16:38
9
esmeelatten
Esmee & fybro/FND :
I have got FND since 2018 and just recently got the diagnoses.....now it is chronic. Stay strong everyone you are not alone💪♥️
2026-07-07 09:25:18
0
alexac_._
Αλεξ メ𝟶 :
I’m one step closer to an answer I hope
2026-07-17 18:02:10
0
jasminethompson05
Jasmine :
What part of the brain does it involve my doctor thinks I have it and idk what to do now im scared they are going to think im making it up again
2026-05-31 20:04:58
1
boo22nice
🦧Boo FND strong💛🦧 :
I have FND sending you lots of hugs your way🥰🥰🥰🥰
2026-07-05 19:45:57
0
tinks950
Lauren ✨ :
Poor thing 🥰
2026-07-05 09:08:00
0
lifestory1982
🦄🪻🐙🦩🐥🌻🍀🍏❄️🫐🌈 :
What’s FNd?
2026-07-18 10:23:32
0
userawhw3pxh6q
A-JAYE🤗 :
FND is real and more common than you think don't let the doctors fob you off tell them you need a neurologist and psychological support xx
2026-07-29 22:15:38
0
goldstac4
Goldstacs 🫶 :
i am being tested for this and epilepsy awful xxx
2026-07-05 15:26:00
0
goldstac4
Goldstacs 🫶 :
really hope you are ok and you recover soon 🥰🥰 xxxxxx
2026-07-05 15:26:35
0
tjmeldo
Tj :
I feel you
2026-05-29 11:05:55
0
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