I'm so glad you are saying this. It's a constant battle.
2026-05-28 23:41:27
54
I like bagels :
Most phone calls end with me in tears
2026-05-29 20:58:53
16
:
Here’s the thing, you get it. So why don’t the others. I was 45 and had been disabled for years when we had to move and a new doc said I was too young to be disabled and discontinued every med ten years of tx had put me on. I quit medicine that day. I’m almost sixty, I haven’t gone back. I use medical marijuana. Way better, it’s just now I get no medical care. And I’m still too afraid to even start. Worse, I was an ICU nurse.
2026-07-04 20:42:23
10
Rachel 🙋🏻♀️ :
Also when they make me do more work or advocate myself, causes me more stress, for me that means more pain.
2026-07-04 16:13:01
32
Twilight🌟Wolf🐾 :
you are so right!! And I have ADHD and anxiety...every call triggers my anxiety..and every dismissal affects my rejection syndrome my ADHD so graciously shared with me..and it almost makes my pain at times..it's all so hard!
2026-07-05 02:00:37
12
Leah :
Thank you for thinking about all this in detail and understanding 🙏 it’s not just the stress of having to do it at all knowing what people often assume, it’s the build up of many many various calls over time with the intermittent reinforcement of being dismissed even once more in a way that might totally drain your soul. Holding breath entire time just hoping. Sounds dramatic but after the first year, even, of my chronic issues it had already started to feel that intense and scary.
2026-07-22 16:10:26
5
Carol Thill :
Your page is so refreshing. Since you are also a chronic pain patient, you have a unique firsthand perspective that's impossible for others in your position to understand as they lack truly grasping how difficult and challenging it is since they have never been there themselves.
2026-05-28 21:35:33
20
artimis444🇮🇪 :
Had that very phone call today. 😞
2026-06-30 13:20:02
5
🌜☁️Sunday :
Thank you so much for acknowledging this
2026-06-29 19:05:47
4
Sudru :
I procrastinate even if it does me harm. If I hear a harsh voice, I cry and stay upset for a day. I fear call backs fr MDs office.😰
2026-05-29 14:17:33
2
maitaivegas :
Oh my God making phone calls is exhausting. I will put off making a call for a week cause I know it’s gonna make me exhausted.
2026-05-29 18:41:18
9
kass :
whats traumatizing to me is why they wont fill my med. ive drove all over creation and miss one dose the wds start...but they make me suffer knowing the pharmacy closed
2026-06-05 22:29:55
2
jenuine 🍂🧿 :
why don't the migraine docs and clinics in my area use steroids in the nerve blocks😭
2026-05-29 08:42:16
2
Beans :
Just went through this today again
2026-05-29 00:47:32
1
nell 🇦🇺 :
seriously I get so anxious when. I have to make a call and repeating myself always
2026-05-29 11:38:38
2
Moon Dancer :
"emotional vigilance" thank you for this. I have chronic pain but I'm fairly new to lasting acute pain and the energy it takes. thank goodness! I currently have great pain management and pharmacy availability. thank you so much for your supportive videos
2026-05-28 20:35:37
11
Jess💚 :
u know what I was told this week... You dont have to describe it.
2026-05-29 03:36:44
1
Miracles can happen❤️ :
I can't travel more than thirty minutes without stopping for that long. my Dr's are 3 hours away and was told to figure it out? this is so wrong
2026-05-28 23:39:33
3
tam ☀️ :
Yes! So refreshing to relate to others 💙💯
2026-05-29 07:29:51
1
Mére :
Phone anxiety is why I am on anxiety meds. It’s bad
2026-06-21 11:49:56
2
CԋɾσɳιƈαʅʅყCσʋҽɾҽԃIɳDσɠʂ :
My telehealth apt w my pain med dr two days ago didn’t happen bc i didn’t get the link (again) & STILL haven’t got ahold of anyoneee about it and my meds are about to run out so that’s coolllll. 😩😭
2026-06-20 03:47:39
2
Moe ❌️ :
Having to justify my pain every single time gets so old. I carry a copy of my MRI report with me so when I have to see a new provider they can see why I'm in pain. Also, if I'm not asking to be seen for the pain and am not asking for medications, who do I have to explain everything.
2026-06-30 21:24:15
2
Ange :
Disbelieved. Laughed at. Judged.
2026-05-29 11:27:48
2
✨TessaBHealing✨ :
The literal panic attacks from the phone calls is traumatic. It’s so real. Just trying to keep my voice at the same tone is exhausting.
2026-05-29 15:12:57
4
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