@chronically.lola: Chronic illness changes your relationship with pain. A lot of people assume that if the pain is bad enough, you’ll immediately go to the ER. But many of us have been through that cycle enough times to hesitate. For me, the pain is severe enough that I’m actually crying, which is not something I do in pain. I’m guessing it’s my hiatal hernia acting up, but honestly…🤷🏻‍♀️ What I do know is that when you’ve spent years navigating appointments, specialists, tests, and emergency rooms, “just go to the ER” doesn’t always feel as simple as people think. So today I’m hoping my gastroenterologist can get me in quickly and that I can get some answers. Anyone else find themselves weighing the physical pain against the emotional exhaustion of seeking care? #ChronicIllness #ChronicPain #InvisibleIllness #SpoonieLife #ChronicIllnessAwareness

Chronically Lola
Chronically Lola
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Saturday 30 May 2026 22:01:26 GMT
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chronically.lola
Chronically Lola :
Update: Gastroenterology appointment in 6 weeks 😔
2026-06-03 23:52:43
2
pip.skweek
Pip Skweek :
Playing the food lottery because of a hernia is not a fun game.
2026-05-30 22:24:20
2
llw2tired
LLW2tired Lauri :
autoimmune hepatitis after liver transplant Sjorgen's flare are often and severely painful. Always questioning myself about seeking help. ER can label me as a "drug seeker".
2026-05-31 20:56:22
1
yem0101
Yemmily :
I feel this with all my pain and I don’t talk about the pain. I ignore the pain in plain sight because when I complain, I feel like a burden. every hour every day, I struggle. From the moment I get up trying to achieve overcome my responsibilities. There’s a pain.
2026-06-03 03:41:32
1
katienauert
katrinka13 :
everyday of my life 🥰 it's ALWAYS a last resort, I avoid it. id rather be in agony in my own bed and that often gets me in trouble. sending hugs and prayers your way 💟
2026-06-01 07:05:31
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cozydayswithamie
amie :
I understand.
2026-05-31 01:45:21
1
kathrynmoravec
Kathryn 💙 :
Absolutely yes! 😳😳💜💜💜
2026-06-01 02:10:42
1
doodlemama_to2
Doodlemama_to2🐶💚🪿🐴 :
Yes!! This!
2026-05-30 22:27:38
1
throughjenseyes
Gfgirlie :
I felt the “nobody is fighting this hard to be sick” in my soul. Honestly being gaslit and said it’s just mental health issues is so frustrating and it makes me want to scream “I WANT NOTHING MORE THAN TO BE NORMAL AND BE ABLE TO LIVE MY LIFE AGAIN!”
2026-06-06 04:58:00
1
becsybabes
💙Becca💙✨ :
Sorry you're struggling right now 🫂. When people suggest going to the ER I die a little inside, for many of the same reasons you mentioned. But I've gone that route and I no longer feel like I can trust that if I were to go in to the ER, that they'd actually do something effective. Instead I have watched them roll their eyes at the laundry list of symptoms I'm struggling through. I've begged them to please help me figure out what's wrong and run any and all tests to give me something to work with and asked them to please not just overload me with medication that essentially knocks me out, just so they can send me home with no lasting relief or answers as to what was wrong. Yet over and over they would hook up a bag of fluids with the I they would often have to dig for, then when I was no longer coherent enough to argue, would send me home to sleep it off. One of those times putting me in a taxi, handing the driver a voucher for my ride and sending me home like that, because the person who brought me to the hospital had to leave for work after waiting for so long to be seen. And because I was so out of it, I couldn't give them a phone number to have her come back to take me home (she'd left her contact info at the nurses station, not that they checked) and I didn't have my purse for them to look for other contact info, so sending me home in a taxi, all drugged up, seemed like a good idea to them. Let's be so for real! I didn't even have a key to get in the house when they dropped me off. I was left sitting on the porch passed out for hours until my ride had finally called them to follow up and see how I was doing, found out what happened and rushed to get to me so she could get me safely in the house. So yeah... Nooo, I don't think I will be seeking out help from the ER. I can only imagine how nice it must be to walk into an ER and trust that you'll be taken care of....
2026-05-31 04:16:57
1
m7ghf13
MJ :
feels like a heart attack. but the hiatal hernia. but the muscle tension. the reflux they supposedly fixed. the Endo. the adeno. the anxiety. the trauma. the endless survival mode ruining your present with your only child 😭
2026-05-30 23:29:15
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