I am lying about my pain, I'm saying I'm in less pain than I am.
2026-06-01 06:15:03
20
KayAnne :
I don’t expect anyone to understand. 4 surgeries and chronic pain for 8 years and still treated like a liar or drug seeking. It is so old. After jumping through all the hoops given to me it’s still that way. Nothing has helped and because I won’t go down the neuro stim route it’s worse. Doesn’t help I live in a small area and doctors here don’t understand it.
2026-06-22 19:53:23
1
gmatiki@43 :
I wish I had a provider like you! 😔
2026-06-02 12:35:20
3
🕉️🦄Mystie Dragonfly🦄🕉️ :
They also don't see the pain meds and relaxation meditation I have to do 2 hours before going anywhere too.
2026-06-29 23:22:40
0
Lisa Patterson :
That is terrible, I feel like I can see the pain in your eyes,the slight ways you adjust how you sit,I see your pain and the battle you are going through -all the while taking the time to share such deep understanding truths and outreaching to others who are also misunderstood when you don't have to. I am praying for you. Thank you for all that you do! 🥰God bless you!
2026-06-17 07:53:50
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@lorosyewart927 :
And the total exhaustion! Just because you have a good hour or so does not mean the rest 22 hours are not misery.
2026-06-16 05:19:32
0
CinderCNA :
You have helped me so much. I have felt so alone. I have been telling all of my friends about your page. You make me feel seen. I wish you where in my area I would so be in your office.
2026-06-01 12:32:02
0
❌Tracy Rowland Trask :
This hurts the most!
2026-06-10 05:21:16
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Lorinda :
we are good at "acting" fine. Do what we have to then go home and pay the price
2026-08-01 16:38:24
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Alysia :
I know I will suffer when I plan a project or have to do yard work.. I have to force myself to get it done
2026-06-02 23:24:57
0
EmpressWoo :
I stopped lying about my pain. The people who matter, want to know how I'm really doing. They don't need me to mask or deny my pain. I stopped letting what other people think affect my well-being. At least most of the time. 😜😁
2026-06-02 01:46:18
1
Delmita :
My parents are old school boomers. I have hEDS- I’ve been masking my pain my entire life. It’s more exhausting trying to get them to understand than to just accept the fact that they don’t have the capacity to understand my situation. Takes a long time to get there tho 😢
2026-06-01 16:08:30
1
Artificial_Alternative :
Paint 😭😂
2026-06-04 14:46:33
0
bebexcelestial :
A state medical Dr said I had the syndrome where people lie and exaggerate because I told him he was hurting me during my exam when I told him not to bend my limbs because it hurt smh 💔
2026-07-22 22:57:52
0
Jill Harris7283 :
I always lie about the level of pain I'm in, especially if I'm going through a flare-up! It's a constant battle for all of us chronic pain spoonies ❤️
2026-06-01 06:25:16
3
Deerlick Station :
I hear you, I had an end of school year party for my grand kids and have been in bed all day today.
2026-06-01 23:42:59
1
Judith :
So true. 🙏
2026-06-01 23:49:45
1
Lenuta Lenuta715 :
cel mai bun doctor sinteti❤️aveți dreptate in tot ce spuneți😭
2026-07-30 15:17:44
0
user1727504557914 :
I know you’re not lying about your pain. You have an understanding that only comes from someone who knows what it is like to live in constant pain. Anyone who says you’re lying has no idea what it’s like to live in pain, with chronic health condition(s), or both. I’m in a flare right now where everything seems impossible.
2026-06-02 02:40:43
0
Dr. Amina Paul Turton :
the tears 😭
2026-06-01 23:10:22
0
Lorinda :
Any body have any tips for the fatigue..my fatigue has been off the charts....help
2026-08-01 16:39:45
0
TEXAS :
Sending prayers to you 🙏 🥰 I just don’t tell anyone I keep it to myself I cry in silence 🥹
2026-06-02 02:11:43
0
pmam :
We lie about our pain every day. People think we are overstating our pain level and yet we are actually underestimating our pain level.
2026-06-02 12:13:51
0
user2942455821962 :
I wake up everyday wondering how Im going to get through the day with my pain. People have no idea what we are going through. love your advice and support ❤️
2026-06-01 16:42:11
0
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