@drchristinahibbert: 👋🏻My tremors finally decided to show up for an appointment. Too bad it was the wrong specialist. 😅 🌟Today I was at the neuro-ophthalmologist—not because of my tremors, but because we’re investigating the constant pressure in my head and whether it’s affecting my optic nerves and vision. Meanwhile, my hands were over here like: “Since we’re discussing neurological symptoms, we’d like to show off.” 🫨 👉🏻The interesting part is that I didn’t feel anxious, stressed, or like I was having a POTS flare. I felt completely normal…except for the shaking. 🌟That’s one of the strangest things about chronic illness. Sometimes your body is doing things that don’t match how you feel. 👉🏻This was my last specialist appointment before I head back to my neurologist next month to review everything we’ve learned so far. We’re looking at vascular compression, pressure issues, POTS, tremors, and how all of these puzzle pieces might fit together. Hopefully we’re getting closer to answers. 🤞 I’ll keep you posted. ❓Who has this? What’s it been like or about for you? #ChronicIllnesslife #POTS #neuroophthalmology #IIH #vascularcompression

Dr Christina Hibbert
Dr Christina Hibbert
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Thursday 04 June 2026 01:14:35 GMT
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donnaallison477
donnaallison477 :
My husband started with the shakes like this. He did go to the doctor and was diagnosed with "Essential Tremors." He's on medication that he takes 3 times a day.
2026-06-04 02:34:57
279
gillianmary2
Gillian Mary :
I have pots as well, and been diagnosed with essential tremors
2026-06-05 05:56:58
2
panickin.skywalker
Sam🖤 :
IIH is such a hard, unforgiving condition 😞 I got diagnosed with it a year ago. Wishing you strength 🙏
2026-06-04 20:20:04
12
madison.w_
Madi |Avrg Mom |⚡️ :
I have tremors and hand weakness. Began one day realizing I was having issues opening packages with the pulling motions. Tremors started, could hardly steady to insert an IV. Tremors come and go but when they are present. they are there. what did you find out??
2026-06-15 23:25:50
6
rivergodoftea
River Parker :
I got the pentad super syndrome with IIH diagnosed back in 2017. Had the same symptoms with 2-3 spinal taps every two weeks until I finally convinced the doctors to implant a vp shunt. The IIH symptoms lessened by *a lot* since then. Not saying you should get a shunt but maybe (if you dont have one yet) it might be worth a thought. Wishing you well!!!
2026-06-05 22:52:45
6
cosmiccoochie
cosmiccoochie :
I saw your symptoms in the caption, I had the same symptoms. have they done a lumbar puncture to rule out MS? thats what mine ended up being.
2026-06-04 03:16:15
36
silencedbyyounever
Truthfullyspeaking :
Thyroid issues
2026-06-04 19:16:52
1
kayramona2
Kay_Ramona 2 :
i have a tremor but bc the Dr didn't see it, they suggest I seek therapy instead
2026-06-19 15:27:24
2
craftytactics
CraftyTactics :
🙋🏻‍♀️meeeeeee! End result—I was diagnosed with psoriatic arthritis and where one autoimmune issue lies, typically there’s more to come so that led into “suspected” neuro lupus and as a result IIH ended up being one of my issues that they believe is all related. They’re using the term suspected because the rheumatologist doesn’t think my labs are quite bad enough for a formal diagnosis even though my primary/neuro/neuro ophthalmologist all think yes it’s neuro lupus 🙃
2026-06-04 02:10:59
10
jessh999
Jabberjaw :
Probably sounds like a dumb question - but have you been checked for Celiac Disease? Turned out to be what was wrong with me, and the root cause of my IIH, neuropathy in my fingers, and my migraines 🫣 can also cause tremors depending on which subsequent deficiencies you end up with
2026-07-16 18:32:25
0
kayzzzio
Kaylee 🐞🌻☀️ :
Both me and my dad have tremors like this but we both don’t know what it is
2026-06-15 03:32:37
2
zebspice
Zebby :
I worked at a movement neurology clinic, honestly a large portion of our patients similarly like your tremors had essential tremors. Honestly when they occur, record a lot, see if it’s being caused also by other things, caffeine, stress, lack of sleep. Or you can also check to see if you have family history of parkinsons disease
2026-06-04 11:32:11
4
williamarmstrong553
williamarmstrong553 :
I take primidone for essential tremors and it works fairly well .... also helps with my seizures
2026-06-04 19:58:48
7
j_o_c_e_e_c_o_l_e
j_o_c_e_e_c_o_l_e :
Fnd
2026-06-06 12:46:32
5
ktlikely
ktlikely :
Just diagnosed with IIH+p last year and trying to treat it before surgical options. Can your neurologist tell you exactly which symptoms are attributed to which disorder? I am worried that everything I am experiencing is not solely IIH related.
2026-06-05 01:51:27
1
andy24914
andy :
I have essential tremor consult sent my referral back putting me on propranolol didn’t work, now doc thinks I have orthostatic tremors had to send videos and I’ve getting a referral but god knows how long before I see someone
2026-06-05 06:31:03
1
shrimpiecutiee
SHRIMPIE :
Hi hi so I was diagnosed with pernicious anemia! I had no b12. But I want to talk to you about the tremors because I have it really bad. But not having vitamin b12 vitamin A vitamin b vitamin E and vitamin b6 truly affected my eyes brain and everything I didn’t know how important all of it was until I developed the autoimmune disorder
2026-06-04 21:21:37
0
allisonessig1
Allison Essig395 :
I have an essential tremor and it definitely gets worse when I’m nervous. But tremor is pretty consistent for me. I’m seeing a movement disorder specialist for it.
2026-06-05 03:21:29
3
jaxanddaisythegoldens
💜Keri💜 :
It’s like I just read my own symptoms. The constant pressure at the inside corner of my eye, my POTS, my hand twitching, fingers draw together randomly, etc.
2026-06-04 21:40:51
3
shannibananni420
ShannieXoXo💨🌲 :
Learned from my neuro at UCHealth that nutcracker compression can cause iih from backflow. Still right behind you on finding and fixing what can be to relieve the vascular issues causing pots 💯👌
2026-06-04 16:47:15
3
stacyschroeder2
Stacy Schroeder :
I get tremors but they affect my whole body except my left side is always worse. They usually last from 10 minutes to hours. I am assuming they are a part of hyper pots but see a neurologist for them in October. It helps me to take lorazepam for them to help calm my body down, it doesn't always help but sometimes.
2026-06-04 13:11:31
1
miss.princess.peach
🫧 Princess Peach 🫧 :
What did they say?❤️
2026-06-05 08:49:24
0
rockin_my_weird
Rockin My Weird :
I was having tremors and ended up having Graves’ disease
2026-06-25 20:50:13
0
blackpeppermoon
🌿❤Rowan and Rose❤🌿 :
fnd ? ❤️
2026-06-05 10:09:37
0
ap97460
user90158673942131 :
Are you on thyroid medication? Long term use can do this!
2026-06-11 05:18:36
0
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