@elliecolts: My appearance on Look North to talk about my @bbc ideas #endometriosis documentary ❤️ we only had 2 minutes so I’d like to add the chronic fatigue is crippling & what you may not know is endo is not a purely gynaecological condition. It has been found on the brain, lungs, bladder, bowel, heart, liver. Women’s lungs are collapsing with endometriosis. And yet 1 in 10 women like me live with no treatment, no cure and no one knows the cause. It is said to spread like cancer. The funding isn’t there, the research isn’t there, the women’s health strategy does not include an endometriosis pathway. I live in chronic pain every day in my abdomen, back, legs, horrendous bleeding, crippling fatigue and brain fog. I cannot live this way forever, 10% of women in the UK cannot do it. I even had my appendix out because I turned up at A&E with such bad pain in 2016, and there was nothing wrong with my appendix. This is a common story among endometriosis sufferers. Literally getting a body part removed unnecessarily. Unbelievable. Because my endometriosis pain was misdiagnosed as appendicitis. Finally in 2022 after living 10 + years undiagnosed, I had a laparoscopy - the outdated only way to diagnose endo. Post diagnosis I was told to take the pill and painkillers. Women my age (I’m 27) are getting hysterectomies desperate for relief but that does not cure the disease. Endometriosis costs the UK economy 8 billion pounds a year. 1 in 6 women leave the workforce because of endometriosis. #fyp #foryoupage #chronicillness #endo

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Thursday 04 June 2026 18:37:03 GMT
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roxanneschlabertz
roxanneschlabertz :
i'm 18 been trying to get diagnosed for 6 years even moved countries and they still don't take me seriously here idk what to do at this point
2026-06-04 21:02:53
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carolineedwards6
Caroline :
I took my dauggter too the gp again with cripling pains and heavy bleeding and what she givibg her is tablets too try then offer her the pill x
2026-06-05 06:48:50
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amybarry.xo
AmyBarry.xo :
so glad you spoke out🤍
2026-06-06 20:42:30
3
louisecoplandgenx
Louise Copland Genx :
And after diagnosis still no help Doctors think your dramatic so think doctors need to be educated on care
2026-06-06 17:14:56
1
daniellamaccain
Daniella Mac Cain :
💯 am going trought hell am on pills for 20 year even the pills it still burst since yesterday am bleeding and have pain all my legs am planing for a sugery no gluten no lactose just no life am stage 4
2026-06-06 16:31:12
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katarzynajanick67
katarzynajanick67 :
I’m naturally a positive person, but until that feeling disappeared, I hadn’t realized how much of my life had been overshadowed by it. Today, I still have good days and bad days. On a good day, I try to do everything because I never know what the next week will bring. I work full-time, I keep going, and I manage my life the best I can. What I find hardest is that endometriosis is often not recognised for what it really is. People hear “pain” and think they understand. But for me, it was never just pain. It was that feeling. A feeling that lived with me every single day. A feeling that stole my energy, my confidence, my social life, and sometimes my sense of who I was. That’s what my struggle with endometriosis has been. Not just pain. That feeling.
2026-06-06 04:08:27
1
sonia.masihh
sonia.masihh :
💯🙏
2026-06-07 06:06:04
0
l_h_21
•𝙇𝙃_²¹• :
💛
2026-06-07 08:25:47
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katarzynajanick67
katarzynajanick67 :
After 10 years of living with endometriosis before finally being diagnosed, I spent years trying to explain to people that something wasn’t right. For a long time, I thought what I was experiencing was normal. I lived with pain every day and convinced myself that I was just strong, that I could handle it, that everyone probably felt this way. But it wasn’t just pain. I started calling it “that feeling” because I didn’t know how else to describe it. That feeling was there every single day. Not just during my period. Before my period, during it, after it. Sometimes the pain would ease, but the feeling stayed. The best way I can describe it is a complete lack of energy. It’s like your body is numb and aching at the same time. Everything hurts. Your stomach hurts, your back hurts, your arms hurt. Even your nails feel like they ache. It’s everywhere, and that’s what made it so difficult when doctors asked me where the pain was. Where exactly is it? How do you point to one place when it feels like your whole body is carrying it? I remember telling one doctor that it felt like something had died inside my stomach and spread everywhere. It sounds dramatic, but that was the closest description I could find. At one point, doctors were trying to work out whether I was going through menopause or whether I was depressed. I kept explaining that I wasn’t depressed. I felt low because I was in pain all the time. When you’re living with constant pain, of course your energy disappears. Of course you’re exhausted. Of course you struggle. Over time, I started withdrawing from people. Even my friends tried to understand, but how can someone understand something they can’t see or feel? To them, it looked like I just had difficult periods. They would accept that I wasn’t feeling well and couldn’t come out, but I don’t think anyone truly understood what was happening inside my body. Then I had my first operation. And afterwards, that feeling disappeared completely. For the first time in years, I felt like myself again. I remember feeling genuine happiness. I remember having butterflies in my stomach. I remember waking up and realizing that this was what normal felt like. It wa
2026-06-06 04:06:25
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