@thebreastchapter: No one warned me about this after my double mastectomy…Instagram did. Before surgery, I knew about drains, expanders, and the recovery process. What I didn't know from my medical appointments was the possibility of developing cording or frozen shoulder after surgery. I actually learned about both from this breast cancer community on Instagram. Because so many women shared their experiences, I started researching and learned that cording can happen after lymph node removal and that maintaining shoulder mobility is important during recovery. So from day one post-op, I was already doing the stretches I had learned about to help reduce my risk. If you're unfamiliar with these terms: ✨ Cording (Axillary Web Syndrome) can happen after lymph node removal and may feel like tight, painful bands running from your armpit down your arm. ✨ Frozen shoulder is a condition where the shoulder becomes stiff and painful, limiting your range of motion. At my one-week post-op appointment, my team checked my range of motion. Even with doing my exercises consistently every day, I was still experiencing some limitations, so they went ahead and referred me to physical therapy. That was actually the first time cording and frozen shoulder were specifically discussed with me by my medical team. I'm sharing this because if you have a mastectomy or lymph node removal coming up, these are great topics to ask about before surgery. Knowing what to watch for and when to seek help can make recovery feel a little less overwhelming. I'm curious…when did you first hear about cording and frozen shoulder? Before surgery, after surgery, from your medical team, physical therapist, or from other survivors? I'd love to hear how it was explained No one warned me about this after my double mastectomy…Instagram did. Before surgery, I knew about drains, expanders, and the recovery process. What I didn't know from my medical appointments was the possibility of developing cording or frozen shoulder after surgery. I actually learned about both from this breast cancer community on Instagram. Because so many women shared their experiences, I started researching and learned that cording can happen after lymph node removal and that maintaining shoulder mobility is important during recovery. So from day one post-op, I was already doing the stretches I had learned about to help reduce my risk. If you're unfamiliar with these terms: ✨ Cording (Axillary Web Syndrome) can happen after lymph node removal and may feel like tight, painful bands running from your armpit down your arm. ✨ Frozen shoulder is a condition where the shoulder becomes stiff and painful, limiting your range of motion. At my one-week post-op appointment, my team checked my range of motion. Even with doing my exercises consistently every day, I was still experiencing some limitations, so they went ahead and referred me to physical therapy. That was actually the first time cording and frozen shoulder were specifically discussed with me by my medical team. I'm sharing this because if you have a mastectomy or lymph node removal coming up, these are great topics to ask about before surgery. Knowing what to watch for and when to seek help can make recovery feel a little less overwhelming. I'm curious…when did you first hear about cording and frozen shoulder? Before surgery, after surgery, from your medical team, physical therapist, or from other survivors? I'd love to hear how it was explained to you and what your experience was like. #breastcancer #cancertok #breastcancerawarness

Jessie Morales
Jessie Morales
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Region: US
Sunday 07 June 2026 19:21:04 GMT
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charboydd
Charboydd :
My mom has frozen shoulder from her double mastectomy :(
2026-06-08 01:54:52
5
holtur
Holly Louise :
I learned about literally everything on TikTok. I was referred to Occupational Therapy, a Lymphedema specialist, by my surgeon immediately before my surgery. They wanted me to do it prior to surgery, but there was not enough time. They did not explain what I needed it for or what to look out for, but I’m grateful for the insistent referral they gave me. My range of motion is not 100% yet, but it is far better than it would have been had I tried to recover on my own. I’m so thankful for this app and this community of people willing to share their stories. I would have been lost without both.
2026-06-07 22:27:42
2
aprils_here2
April :
I got frozen shoulder after my radiation. I’ve been in PT and OT for almost 2 years because of it lost pretty much all mobility in my left arm.
2026-06-08 09:43:47
3
c.cummings5
c.cummings :
No one told me about the possibility of cording either. Now I’m in PR for it.
2026-06-07 23:13:02
2
jackiegill34
jackie gill :
Cancer rehab OT here! I wish you were automatically referred right after surgery and even before! We can help immensely throughout breast surgery journeys 😊
2026-06-07 21:47:46
19
coachbecky20
Becky :
I heard about frozen shoulder when I came down with it after my mastectomy. It was horrible! PT helped tho!
2026-06-08 09:58:22
1
jacqueline69142
Jacqueline. :
Such a brave lady .I only had one masetamy and i found it hard espesalliy the chemo made me so ill .well done to you so so brave .Have you got children .🥰🥰🥰❤️❤️❤️
2026-06-13 12:52:29
1
ms548270
Ms :
at my post op appt with my surgeon she set me up for PT and it has been so wonderful range of motion so back
2026-06-08 17:01:45
2
melinda.thomas3
Melinda J Thomas :
My oncologist set me up with an OT before my surgery. I’m so thankful for her. She actually set me up with a nephrologist because I already had stage 3 CKD. She has tried to catch everything before it started.
2026-06-08 04:11:35
3
isla_gnk
^*Mishel*^ :
I got cording after surgery. I wasn’t aware of it either , figured it out myself by googling. Thanks for spreading knowledge ✨
2026-06-08 00:55:21
3
raqueljimenez1130
Raquel :
Thank you for sharing I have my double mastectomy scheduled this Thursday
2026-06-08 04:01:57
2
ginger_cruel
Ginger Phillips :
Is it better to be moving arms after mastectomy I had a single 4 days ago and I’m using that arm a lot
2026-06-08 16:49:32
2
scruffin_made_me_do_this
shitty titty committee :
I learned about cording from TikTok. when I went to my OT consult,she said its pretty much a guarantee but that she will "break" it for me.
2026-06-08 13:03:52
1
kaylas_matts_mom
Sarah_Jane! :
My dr doesn’t want me to have my arms up above shoulders until 4 weeks post op.
2026-06-08 19:18:34
3
dani_richelle2
🎀𝓜𝓯𝓴𝓲𝓷🖤𝑮𝒐𝒅𝒅𝒆𝒔𝒔🏍 :
No but I am in the beginning of my fight. So thank you for sharing that. putting on my board for future reference. 😁
2026-06-07 22:17:58
1
lucia_pasquale
Lucia :
I’ve learned so much from your videos. I’m still in the chemo phase, but after that I will have a bilateral mastectomy and 30 days after that they will start reconstruction with expanders.
2026-06-08 01:28:38
1
revmaryz
user7443516753532 :
I’m in OT right now. Had a lumpectomy and radiation. Was miserable afterwards. My oncologist referred me to PT. What a relief. Now awaiting revision surgery.
2026-06-10 02:22:01
1
mrsirishdude
PerMyLastScan :
I learned about this today! Thank you for sharing so I can have these discussions too.
2026-06-08 16:19:53
1
odly0
$ODLY :
l pray God heals you. l believe he will do . They only God we trust.
2026-06-09 21:10:06
2
fati.mohamed12
Fati Mohamed :
2026-06-07 21:34:35
1
user4133007333400
Patti Steely :
My surgeon had therapy lined up ahead of time for these very issues! I had a smooth recovery with no issues.
2026-06-08 23:09:21
1
maddy.wistenbalth
Maddy Romanov :
May God bless you and grant you all graces.
2026-06-07 20:18:37
1
alulatravel
Alula | Travel With Impact 🎗️ :
I got cording too and thankfully workout itself out w OT✨ wish I had known earlier!
2026-06-07 20:03:35
1
crimsonbeach_805
CrimsonBeach_805 :
I had frozen shoulder in perimenopause. Neither my doctor nor the physical therapist I saw for the frozen shoulder mentioned it could be because of perimenopause
2026-06-16 16:15:42
0
freedomfemfusion
FreedomFemFusion :
Bilateral mastectomy May 11, 2026 I was not warned about cording I was not warned about lymphedema. I had to find out myself online and watching videos on TikTok from wonderful women like you educating me I had to buy my own compression sleeve.!!!!
2026-06-25 23:38:41
0
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