@amy.victoria.m: A vulnerable moment. Just because I’m on a pain pump doesn’t mean I’m pain-free. Today was a really hard day of pain, tears, and learning as I go. ♥️ #fyp #chronicillness #painpump #pallitivecare #ehlersdanlos

MarQuisha Bates :

I wonder if I qualify for a pain pump because I have rheumatoid arthritis very serious and trying to get pain meds. It’s like pulling teeth. They want to do the injections that I’ve had all of them. They’re painful and they don’t work. How did you qualify for the pain pump?

Jody Hjelsvold :

Is this all because of ehlersdanlos?

brettegan48 :

You will get your dose adjusted it takes time 👍👍👍👍👍👍👍👍I have pain pump I love it 👍👍👍👍👍👍👍👍

Amanda :

I’m curious as to what is hurting? You look like you’re in terrible pain, is it your back? Stomach? Head? Whole body?

stillwater :

Has anyone explained rebound pain to you? I'm a nurse who has chronic illness and was prescribed opiates. I'm sorry you're suffering.

Liv :

Thank you for sharing ❤️

Sarahhhh :

Learn something called Pacing, being chronically in pain we mistake the moments of relief and do too much to try to catch up with chores and tasks but it will always cost you when you do too much. Even when your pain is relatively okay, and you feel like you can accomplish basic tasks, you need to pace yourself instead of finding out you did too much and have to suffer even more. You realize you did too much when it takes days to regulate yourself to a tolerable level again. No amount of tasks or chores completed is worth setting ourselves backward, causing more suffering, we don’t deserve any more suffering, it’s already hard enough. Be kind to yourself.

Steven Mango :

Are you talking about an intrathecal pain pump implant or a PCA pump??

Marsik :

I never seen pain pump at home before.

Hunter :

Dilaudid pain pump is suppose to be very effective 🤔

Psychotic ❄️ :

When doctors put you on a pain pump, do they typically put you on the lowest dose possible so that you can function, but still causes you to feel pain? Does your doctor know that you’re in this much pain on the pain pump?

caseywelter1 :

They don’t give you oral medicine you can take for this situation

Bre Jacoby :

I get it, when you feel no pain, you push it. I have been there. My love and prayers are with you 🙏💜

johnny honny :

this was definitely educational! looking to decide on either pain pump or spinal cord stimulator and wondered about if this could happen

Ray Fraizier :

I do this bc it feels good to not have pain and then it hits u hard

PlayfulThread :

u just described my life for the past 20 years. and the guilt, oh, the guilt is there to make you more miserable. i can't say no, I can't cuz the guilt....

KL :

Awwww honey. I see those tears. I am sending so much love your way. ❤️❤️❤️❤️

Chloe 🦓🎗️ :

learning to pace is so hard i’m not there yet myself. don’t be hard on yourself be proud of yourself for what you got done and rest. hugs 🫂 💕

‘Blessed by the Best!” :

Take care of yourself, sweetheart. I’m praying that the pain subsides for you and you learn quickly how much you can do when you’re not hurting that this doesn’t happen that you get caught up on what you need to do so can do what you need to do and not being in pain like this afterwards.

Mia1806 :

Health is the most sacred thing, so doing housework isn't the most important thing when you're not in good health. Everything else can wait. You must learn that your mind tells you "you can," but you shouldn't.

Bailey :

Please, I pray God to relieve your pain sweet girl. 🙏🙏🙏

Bea :

You're doing the "human" thing to push yourself when you have no pain because it just feels soooo good. We tend to forget, but just be gentle on and with yourself, you'll figure it out one day at a time 💜

Amanda McCauley886 :

I have hyper mobility Ehlers Danlos, Lupus, and Fibromyalgia. I am 47 and for the last 20 years I haven’t found a doctor that will give me anything but tramadol. Chronic pain leaves me hopeless and mentally drained.

Paul F :

I'm sorry Amy you're having such a hard time. I hope it passes soon. 🙏 I'll be thinking of you. ❤️❤️❤️

Jeremy :