@todayshow: TODAY.com is spotlighting eight parents navigating the extraordinary journey of raising children while battling a relentless neurodegenerative disease: ALS. By telling their stories, these moms and dads hope to do more than raise awareness. They are pushing for more research, more funding, better treatments and more time with their families. 📸: Courtesy Katie Silvestri / Melissa Korn / Brian Wallach / Salym Liufau / Steve Gleason / Evan Campa / A’Tileana Gipson / Angie Quandt

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Thursday 11 June 2026 00:00:00 GMT