@alyssa.virgil: Looking for insight from other parents who may have experienced something similar with their child. Being told these are simply breath holding spells. Before commenting, please know: 1. These episodes are recurring, and we are already under the care of his pediatrician and a neurologist. 2. We have been advised by his medical team to record the episodes and place him flat on his back when they occur. 3. He has been evaluated multiple times in the ER, including today. We have specifically been told by neurology that calling 911 or going to the ER for these episodes is not necessary unless something changes. 4. His neurologist believes these are breath-holding spells rather than epileptic seizures because they are consistently triggered by him becoming upset, frustrated, scared, or getting hurt. 5. I have asked about anoxic seizures/anoxic convulsions. The neurologist feels this is the most likely explanation for the seizure-like activity that follows the breath holding, but there is currently no treatment or intervention recommended. 6. The episodes usually begin with breath holding and can progress into longer seizure-like events. 7. The seizure-like activity itself can last up to approximately 12 minutes. 8. After the episode, he is often not fully responsive. He may appear to look through us, seem dazed, or not interact normally for a significant period of time before eventually falling asleep. 9. He gets extremely sleepy and will often sleep for 2–4 hours after the episode. Trying to force him to stay awake does not work. 10. When he wakes up, he is completely back to normal and acts as if nothing happened. 11. He has completed an EEG, blood work, and ferritin levels testing, all of which have come back normal. 12. This video was recorded because his pediatrician and neurologist specifically asked us to document these episodes. 13. We are not using social media as a substitute for medical care. He has been evaluated by multiple medical professionals, and we continue to follow up with his healthcare team. 14. We are following the recommendations provided by his pediatrician, neurologist, and the medical teams who have evaluated him. 15. Please be kind. Watching your child go through something like this is terrifying, and we are doing everything recommended by his medical providers. I’m sharing this because I’m hoping to connect with others whose children have experienced something similar. If your child had episodes like this, did they eventually outgrow them? Was there anything that helped? Did you receive any additional testing or answers? #seizure #breathhold #doctor #medical #help

Alyssa Virgil

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Region: US

Friday 12 June 2026 16:54:02 GMT