@nickyautoimmune: Not medical advice. Just something I wish I’d known sooner. If you have fibromyalgia and you’re also dealing with things like flushing, itching, rashes, reactions to foods, medications, heat, alcohol, smells, dizziness, stomach issues, anxiety-like symptoms, or feeling like your body overreacts to everything… It might be worth looking into MCAS. My rheumatologist suspects MCAS and the improvement I’ve had from antihistamines has been eye-opening. Sometimes what we’ve been told is “just fibromyalgia” turns out to be something else as well. Have any of my warriors been diagnosed with MCAS?#rheumatoidarthritis #chronicillnes #chronicpain #autoimmunedisease #fibromyalgia

Nicky Richardson
Nicky Richardson
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Region: GB
Monday 15 June 2026 11:26:00 GMT
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lesleyjdoble
Lipsy75 :
Spoke to my GP surgery about MCAS today and she totally shot me down. Could you let me know what antihistamines to try please.
2026-06-15 15:07:01
8
allsorts64
allsorts64 :
I was diagnosed 11 yrs ago, I ignored it and just got on with it! Now it's horrendously painful, what makes me mad as hell, I've been through years of tests for knees, chest, heart and it turns out is my fibromyalgia... but no one picked up on it!!
2026-06-15 11:34:56
4
jxsminee_xo
J A S :
I did it Nicky!! I pushed for your bloods checklist and finally got accepted after 3 try’s! Roll on 30th June💃🏼 Thank you🫂🤍x
2026-06-16 07:41:34
3
karmenkolar777
Karmen :
I have FM…but when I get antihistamines I can’t even walk or stand up because I am so tired because of the drugs
2026-06-16 20:35:51
3
jay.leigh20
jay leigh :
Do you have any gastro issues with your mcas? 🤗
2026-06-17 05:55:43
3
user5308663687016
Helen😩 :
I have been thinking this a while my gp gave me a sheet on it and sent me away. It was RA, then fibo, it’s such a guessing game x
2026-06-16 21:48:39
3
chronicallycammyb
Cameron Blundell :
Fibro Man here from the UK 🇬🇧
2026-06-16 12:04:53
4
justmejolan
Jolan 🌞 Marley 🐶 :
i think i have mcas.. but my rheumatologist doesn't care 😏
2026-06-15 18:27:56
3
trashyfoxx
LostfoX🗺️✨🐉 :
got told I had fibromyalgia turned out I had ms eds and pots
2026-06-15 21:09:02
2
evabusy
Eua Mpizi :
fibro girl here👐 from Greece!
2026-06-16 11:25:15
2
littlemissmidnight0
🌸Little Miss🌸 :
How do you get tested?
2026-06-17 16:03:19
1
namomme1
notanativedane🌞🌝✨ :
I was diagnosed with fibromyalgia in 2000 and didn't have an MCAS outbreak until 2016. It took almost 3 years to finally stabilize MCAS.
2026-06-15 18:24:15
2
nicety52
slimone1 Gen❌️ :
was told that I have severe fibromyalgia by my rheumatoid dr
2026-06-15 11:33:12
4
h.khan856
Hk🥀 :
Iv had fibromyalgia for 18 years now and its just getting worse instead of better
2026-06-16 12:12:17
2
browniequeen04
Brownie Queen :
I have EDS and fibromyalgia and on methotrexate for severe eczema
2026-06-15 21:09:39
3
bampafish_aylah
bampafish-aylah :
try repeating 55515
2026-06-17 20:57:28
1
caroline58p
caroline :
pareilles tout les jours jai une nouvelles douleurs😢
2026-06-17 06:14:32
1
izzyinthepast
History gossip ⚜️⚜️ :
psicosomatica
2026-06-16 18:25:35
1
emsuzu
emsuzu :
well that's all we can do ,as doctors don't want to listen 😔
2026-06-16 00:19:13
1
pam63699
pam :
what is mcas plz x x
2026-06-15 14:11:21
1
sarahjoned73
Sarah :
Never heard of it x
2026-06-15 17:56:13
1
_.boobookins
Char :
I think I have mcas
2026-06-15 14:58:17
3
lisawhite9595
lisawhite9595 :
What's mcas
2026-06-15 20:39:16
1
traceyt16
traceyt16 :
Am not right at all as a have other illness on top of it
2026-06-15 15:23:16
1
roberto_eq_
Roberto_EQ :
well my neurologist think its not fybro for me anymore, but instead EDS, he gave me q referra
2026-06-15 15:48:54
2
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