@nickyautoimmune: Not medical advice. Just something I wish I’d known sooner. If you have fibromyalgia and you’re also dealing with things like flushing, itching, rashes, reactions to foods, medications, heat, alcohol, smells, dizziness, stomach issues, anxiety-like symptoms, or feeling like your body overreacts to everything… It might be worth looking into MCAS. My rheumatologist suspects MCAS and the improvement I’ve had from antihistamines has been eye-opening. Sometimes what we’ve been told is “just fibromyalgia” turns out to be something else as well. Have any of my warriors been diagnosed with MCAS?#rheumatoidarthritis #chronicillnes #chronicpain #autoimmunedisease #fibromyalgia
Nicky Richardson
Region: GB
Monday 15 June 2026 11:26:00 GMT
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Lipsy75 :
Spoke to my GP surgery about MCAS today and she totally shot me down. Could you let me know what antihistamines to try please.
2026-06-15 15:07:01
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allsorts64 :
I was diagnosed 11 yrs ago, I ignored it and just got on with it! Now it's horrendously painful, what makes me mad as hell, I've been through years of tests for knees, chest, heart and it turns out is my fibromyalgia... but no one picked up on it!!
2026-06-15 11:34:56
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J A S :
I did it Nicky!! I pushed for your bloods checklist and finally got accepted after 3 try’s! Roll on 30th June💃🏼 Thank you🫂🤍x
2026-06-16 07:41:34
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Karmen :
I have FM…but when I get antihistamines I can’t even walk or stand up because I am so tired because of the drugs
2026-06-16 20:35:51
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jay leigh :
Do you have any gastro issues with your mcas? 🤗
2026-06-17 05:55:43
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Helen😩 :
I have been thinking this a while my gp gave me a sheet on it and sent me away. It was RA, then fibo, it’s such a guessing game x
2026-06-16 21:48:39
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Cameron Blundell :
Fibro Man here from the UK 🇬🇧
2026-06-16 12:04:53
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Jolan 🌞 Marley 🐶 :
i think i have mcas.. but my rheumatologist doesn't care 😏
2026-06-15 18:27:56
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LostfoX🗺️✨🐉 :
got told I had fibromyalgia turned out I had ms eds and pots
2026-06-15 21:09:02
2
Eua Mpizi :
fibro girl here👐 from Greece!
2026-06-16 11:25:15
2
🌸Little Miss🌸 :
How do you get tested?
2026-06-17 16:03:19
1
notanativedane🌞🌝✨ :
I was diagnosed with fibromyalgia in 2000 and didn't have an MCAS outbreak until 2016. It took almost 3 years to finally stabilize MCAS.
2026-06-15 18:24:15
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slimone1 Gen❌️ :
was told that I have severe fibromyalgia by my rheumatoid dr
2026-06-15 11:33:12
4
Hk🥀 :
Iv had fibromyalgia for 18 years now and its just getting worse instead of better
2026-06-16 12:12:17
2
Brownie Queen :
I have EDS and fibromyalgia and on methotrexate for severe eczema
2026-06-15 21:09:39
3
bampafish-aylah :
try repeating 55515
2026-06-17 20:57:28
1
caroline :
pareilles tout les jours jai une nouvelles douleurs😢
2026-06-17 06:14:32
1
History gossip ⚜️⚜️ :
psicosomatica
2026-06-16 18:25:35
1
emsuzu :
well that's all we can do ,as doctors don't want to listen 😔
2026-06-16 00:19:13
1
pam :
what is mcas plz x x
2026-06-15 14:11:21
1
Sarah :
Never heard of it x
2026-06-15 17:56:13
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Char :
I think I have mcas
2026-06-15 14:58:17
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lisawhite9595 :
What's mcas
2026-06-15 20:39:16
1
traceyt16 :
Am not right at all as a have other illness on top of it
2026-06-15 15:23:16
1
Roberto_EQ :
well my neurologist think its not fybro for me anymore, but instead EDS, he gave me q referra
2026-06-15 15:48:54
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