@author.km_hofman: My EDS specialized PCP has me use daily miralax now (1/2 to a full dose depending on how I’m feeling), and my poop usually comes out like soft serve ice cream, which she says is what is supposed to be happening. Please talk about your poop more often (especially with your doctors) #colonoscopy #coloncancer #coloncancerawareness #ehlersdanlos #poop

author.km_hofman
author.km_hofman
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Friday 19 June 2026 13:53:41 GMT
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teclik
Teclik :
wait untill you find out there are people in this world who did not have diarrhea for years
2026-06-20 17:51:33
31
libbylow2
Elizaaa :
...oh, it's another symptom of my eds. I'm just a collection of symptoms atp!
2026-06-21 19:03:45
23
mariaus99
Maria 💛 :
For everyone having medical anxiety from hearing this; if this doesn’t happen regularly the most likely reason is hemorrhoids, get your mirror out to take a look down there before you panic. And yes, hemorrhoids are very common.
2026-06-22 00:26:07
1
anna_derosa91
anna_derosa91 :
every time I talk about something regarding my body, I find out it's not normal, it's actually EDS but not an official symptom that doctors take seriously... 🙄
2026-06-20 13:03:12
152
danninyelle
Nellifer :
omg…. This has been happening to me for YEARS….
2026-06-21 20:52:52
12
lily.splodge
lily splodge :
adding this to my list of resons why i have esd
2026-06-21 20:34:01
6
go.on.git2
AnotherPlanet :
I can’t physically consume more fiber or liquids on a daily basis and I’m always stopped up 😳 I didn’t know it could mean something is wrong, like a diagnosis, I thought I was just weird.
2026-06-20 17:54:12
6
nwmfyi
nwmfyi :
Same. Today I noticed at one moment my vision, like my picture i saw was pulsing in the rythm of my heart. I told my husband who was like you need a doctor and i was just like nah, just one more of the eds tricks my body pulls.
2026-06-20 17:25:32
9
chronically.kelly1
Chronically Kelly :
So it’s not normal for that to happen occasionally?
2026-06-19 23:30:05
4
_kbao
Kas :
Wait, so it might not be hemorrhoids?
2026-06-20 21:12:50
1
jacknstein
𝔍𝔞𝔠𝔨𝔶 🖤🎃 :
Do you take psyllium husk? It has helped me a lot with my constipation.
2026-06-19 14:37:08
1
atlasie05
atlasie05 :
miralax twice a day helps me with this and mag citrate as needed ehlers danlos sucksss
2026-06-19 16:42:37
8
samanthamarwood05
Sam :
Oh lord I’m twice a week over stretching 😭
2026-06-19 23:42:19
9
basement.ratto
TheOne :
I have marfans, I feel you 🥲 been constipated since I was 5 no matter the diet, no matter the fluids, no matter the exercises etc. my bowels controls 60% of my life 🥲 vacations is a nightmare
2026-06-21 07:22:08
10
misslojo
MissLojo :
Dear tiktok University bringing me this lady. because ...... Emm... yeah.
2026-06-21 23:01:04
0
nickihaley_
Nicki :
Kat I stg one time I took one last year that made me think I know what it’s like to give birth…. So….. I get you
2026-06-19 19:08:44
12
lsabellemarie
Isabelle<3 :
Take magnesium daily!!! Saved me and my bum
2026-06-20 01:30:05
8
raw_orchid
👾☥ ཐི⋆C⋆ཋྀ ☥👾 :
this genuinely opened a huge can of worms for me , i’ve never heard of eds but after some researching this is the first time ever that i’ve found something that corresponds with all my symptoms
2026-06-20 01:51:15
7
gracefullyalive
Nightshade :
My doctor asked why I would want a diagnosis of a condition that isn’t treatable. So I’ve not got diagnosed 🤷🏼‍♀️
2026-06-21 22:49:36
1
sair4321
Sarah 🏴󠁧󠁢󠁷󠁬󠁳󠁿 :
this has never happened to me ever
2026-06-21 14:49:16
3
ivyshealingjourney
Ivy📚🔮🎨 :
I have to take 2-3 doses of MiraLAX a day. I cannot imagine.
2026-06-20 17:07:51
2
yturijea
Nikolaj :
I am pretty sure that is not healthy
2026-06-19 21:52:37
1
uwujustforyouwu
uwujustforyouwu :
2026-06-20 23:13:31
0
noelleanne68
Noelle Anne :
All the time!!!!! 🥰😂😏
2026-06-21 20:57:42
0
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