@author.km_hofman: My EDS specialized PCP has me use daily miralax now (1/2 to a full dose depending on how I’m feeling), and my poop usually comes out like soft serve ice cream, which she says is what is supposed to be happening. Please talk about your poop more often (especially with your doctors) #colonoscopy #coloncancer #coloncancerawareness #ehlersdanlos #poop
wait untill you find out there are people in this world who did not have diarrhea for years
2026-06-20 17:51:33
31
Elizaaa :
...oh, it's another symptom of my eds. I'm just a collection of symptoms atp!
2026-06-21 19:03:45
23
Maria 💛 :
For everyone having medical anxiety from hearing this; if this doesn’t happen regularly the most likely reason is hemorrhoids, get your mirror out to take a look down there before you panic. And yes, hemorrhoids are very common.
2026-06-22 00:26:07
1
anna_derosa91 :
every time I talk about something regarding my body, I find out it's not normal, it's actually EDS but not an official symptom that doctors take seriously... 🙄
2026-06-20 13:03:12
152
Nellifer :
omg…. This has been happening to me for YEARS….
2026-06-21 20:52:52
12
lily splodge :
adding this to my list of resons why i have esd
2026-06-21 20:34:01
6
AnotherPlanet :
I can’t physically consume more fiber or liquids on a daily basis and I’m always stopped up 😳 I didn’t know it could mean something is wrong, like a diagnosis, I thought I was just weird.
2026-06-20 17:54:12
6
nwmfyi :
Same. Today I noticed at one moment my vision, like my picture i saw was pulsing in the rythm of my heart. I told my husband who was like you need a doctor and i was just like nah, just one more of the eds tricks my body pulls.
2026-06-20 17:25:32
9
Chronically Kelly :
So it’s not normal for that to happen occasionally?
2026-06-19 23:30:05
4
Kas :
Wait, so it might not be hemorrhoids?
2026-06-20 21:12:50
1
𝔍𝔞𝔠𝔨𝔶 🖤🎃 :
Do you take psyllium husk? It has helped me a lot with my constipation.
2026-06-19 14:37:08
1
atlasie05 :
miralax twice a day helps me with this and mag citrate as needed ehlers danlos sucksss
2026-06-19 16:42:37
8
Sam :
Oh lord I’m twice a week over stretching 😭
2026-06-19 23:42:19
9
TheOne :
I have marfans, I feel you 🥲 been constipated since I was 5 no matter the diet, no matter the fluids, no matter the exercises etc. my bowels controls 60% of my life 🥲 vacations is a nightmare
2026-06-21 07:22:08
10
MissLojo :
Dear tiktok University bringing me this lady. because ...... Emm... yeah.
2026-06-21 23:01:04
0
Nicki :
Kat I stg one time I took one last year that made me think I know what it’s like to give birth…. So….. I get you
2026-06-19 19:08:44
12
Isabelle<3 :
Take magnesium daily!!! Saved me and my bum
2026-06-20 01:30:05
8
👾☥ ཐི⋆C⋆ཋྀ ☥👾 :
this genuinely opened a huge can of worms for me , i’ve never heard of eds but after some researching this is the first time ever that i’ve found something that corresponds with all my symptoms
2026-06-20 01:51:15
7
Nightshade :
My doctor asked why I would want a diagnosis of a condition that isn’t treatable. So I’ve not got diagnosed 🤷🏼♀️
2026-06-21 22:49:36
1
Sarah 🏴 :
this has never happened to me ever
2026-06-21 14:49:16
3
Ivy📚🔮🎨 :
I have to take 2-3 doses of MiraLAX a day. I cannot imagine.
2026-06-20 17:07:51
2
Nikolaj :
I am pretty sure that is not healthy
2026-06-19 21:52:37
1
uwujustforyouwu :
2026-06-20 23:13:31
0
Noelle Anne :
All the time!!!!! 🥰😂😏
2026-06-21 20:57:42
0
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