@drgracedpt: #heds #hypermobility #ehlersdanlossyndrome #fyp

Dr. Grace | hEDS, pelvic floor
Dr. Grace | hEDS, pelvic floor
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Region: US
Friday 19 June 2026 23:16:55 GMT
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hardcorehan_
HardcoreHan :
if i squeeze my booty hard enough I can crack my SI joint 🫪 heds is such a trip
2026-06-21 22:03:11
3343
_ballorie
Ballorie :
I don’t have a diagnosis, but I do have an SI joint belt and I literally don’t know how I’d live without it at this point. Out of all the supports and sleeves and braces I’ve collected throughout the years, the SI joint belt is by far the most important for me.
2026-06-20 01:07:14
803
rhymeswithberry
😊 :
I hace a love/hate relationship with compression. my joints and muscles love it, but my digestion, circulation, and sensory aversion do not 😳
2026-06-20 14:25:53
1905
i_dont_thinkso
MavenScarlet :
my lower back and hips are SOOOOO sore all the time from HEDS…. now that i’m older it just never goes away. thinking this might be worth a try.
2026-06-20 02:45:25
894
missmaebe23
Izetta :
I make an SI adjustment (by squeezing a folded pillow between my knees and squeezing as hard as I can) every morning before getting of bed. It's been a game changer.
2026-06-21 17:42:12
283
wildmage.nhymn
WildMage Nhymn 🌙✨ :
I literally "pop" this joint multiple times a day 🫪
2026-07-11 18:47:06
78
longhorn1989
Longhorn1989 :
As someone who had TERRIBLE pubic symphysis pain during pregnancy, I can attest joints that “don’t move” can be so significant! I’m also pretty certain I’m hypermobile.
2026-06-20 00:10:35
239
oak1615
oak :
I saw your post about this earlier so I got an SI belt. Interestingly, It helps me with sleep. Instead of my usual rotisserie chicken sleep where I keep turning all night, the SI belt gives me a feeling of stabilization. I sleep so well! Game changer!
2026-06-20 02:53:26
156
clarissavanarsdale
clarissavanarsdale :
Not been diagnosed, but when I squeeze my glutes something around my tailbone pops and it relieves soooo much pressure
2026-06-25 04:50:55
15
motherofshepherds23
Miranda :
Just convinced me to buy the one in my wish list for several months! Thanks!
2026-06-20 18:59:29
6
.libvvy
libvvy [COMMS OPEN!] :
i went to a rheumatologist who was convinced i have hEDS and when i was sent to a geneticist they refused to see me because its impossible to tell if someone actually has it and now i don't know how to go about my situation 😭😭
2026-06-29 18:13:38
7
marleemad
MarLee :
I cried the first time I wore mine bc of the relief!
2026-06-20 20:36:31
5
hherpin
Hannah :
I call mine my “old lady strap” and she’s a game changer! Brings me so much relief!
2026-06-22 20:27:31
5
sunsetz.eve
𝓔𝓿𝓮𝓵𝔂𝓷 :
I can't differentiate between ligaments and tendons moving and then popping back into place or SI subluxation because I get this sharp pain right where the SI joints are and I have no idea if it's a subluxation from the SI joint or a tendon/ligament out of place.
2026-06-21 20:02:59
5
erynalittlebit
Eryn Paz :
I just ordered one today! wish me luck that it helps 🥰
2026-06-21 02:10:44
5
reesemakeup
Reese<3 :
Issues with my SI at 22 got me my diagnosis, yay!
2026-06-22 21:15:48
5
yourgirl_z5
Zoey :
So I think I’m hyperbole and I also have scoliosis
2026-06-23 22:35:31
6
ashleywolbert805
ashleywolbert805 :
moved enough when I was younger my one leg was like an inch shorter than the other. once fixed at that time legs same length again
2026-06-28 22:44:57
5
kimmyb518me
kimmyb :
Help! I live in Maine and have been turned away by rheum and geneticist - how can I get a diagnosis if they won’t see me 😭
2026-06-24 02:26:09
5
sugarcreekhomestead
Sugar Creek Homestead :
Is there a specific one that you recommend?
2026-06-22 05:38:19
5
procrastinatingmom
mom mom mom mom :
I have an apron belly and trying to wear a si belt is so uncomfortable 😫 I just want to be comfortable 🙃 why is that so much to ask for
2026-06-22 17:00:29
6
shearly.syd
Sydnee | MS Alt Hairstylist 🖤 :
As I lay in bed with my never ending lower back pain and sometimes when I lay flat on my back and move certain way or kinda squeeze ? That will pop. This is why my heated seats stay on no matter the temp when I’m driving lol
2026-08-09 06:47:44
5
.jpgxtl
l00sh :
I've got arthritis in my SI joint 😭
2026-06-23 23:10:58
5
natalie.fountaine
Natalie :
I cant lay flat on my back without it popping out🫩
2026-06-20 14:13:51
6
theinkwell5
The inkwell :
I used to roll back while holding my knees and pop that joint on the gym floor in school. It always felt amazing.
2026-06-25 22:37:48
6
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