Em💘
Region: AU
Monday 22 June 2026 03:10:39 GMT
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myjourneywith_ms :
You know how much I don’t deal well with the grief 😂 The guilt around my illness , the burden I am and the way my daughter has a very different version of a mum then my older boys had. I think knowing it will only get worse like there’s no improvement possible is tough for me x
2026-06-22 07:23:59
5
amie77169 :
I got my MG diagnosis last year at 30.. I can see that I’ve had mild symptoms since I was a young teen, it fits so many of the symptoms I currently have… but honestly, I still feel so doubtful towards the diagnosis. I’ve been physically pained and unwell for so long, searching for a diagnosis and some answers. To finally have a diagnosis, just doesn’t feel real.. It’s like I’m just waiting for someone to take the diagnosis back off me.
2026-06-22 09:32:16
2
lljsmama777 :
I got sick ten years ago with MG. I’ve accepted it and adapted, but I still have moments that cause me to break down and grieve my healthy body. It gets easier, but there’s still a part of me that wonders what I would be like if I hadn’t gotten sick. Feel free to add me, we can talk about MG!
2026-06-22 15:47:14
1
Rachel Jane :
So with you! Myasthenia last year at 33 (while freshly postpartum) and still in denial not much acceptance over here! (Even after a 3 month ICU admission🫠) think I just keep hoping it will all go away 🥺 Acceptance is my main goal 🤞🏻
2026-06-22 04:25:39
3
stace :
I only have one offical diagnosis of pcos at 18 But that one diagnosis never made sense of all my symptoms because I know it’s not normal pcos that is happening to me but that just no one has found what is wrong. Because I have no other diagnosis I live in the it’s in my head and no these symptoms say otherwise so I guess I’m not at acceptance because I have no answers.
2026-06-22 13:35:13
1
mkultra :
23 with my first auto immune disease, now 37 and I have 4 plus EDS, Pots and MCAS. It’s ongoing management and I practice radical acceptance.
2026-06-23 12:11:09
1
Kp ❤️🔥 :
Diagnosed with endometriosis at age 23 and now fibromyalgia, IC being 33 and since being in my 30s the grieving has been something else
2026-06-22 03:56:39
2
francesco𓂀 :
The grief is such a big thing for real. Not talked about enough
2026-06-22 15:50:39
1
Alecia Bryan | Makeup & Beauty :
Grief is so real. It's hard to accept the future is chronic illness when family and friends tell you, you can't think like that and you have think positively. No Kelly, this is my life let me live in the reality of it.
2026-06-22 04:26:25
2
Chlo 🏹🕰️🪩 :
19 for endo; I’m similar and I don’t remember much of the grieving but it comes up every week….
2026-06-22 05:36:47
1
Marley & Me (the sick human) :
I've been unwell most of my life but the most diagnosis i get and the worse my quality of life gets the harder it gets to accept new meds, new symptoms, friendships falling apart... definitely making my physiologist work hard for her money 😂
2026-06-22 03:48:22
1
Belinda :
Love you 💘
2026-06-22 09:41:14
1
Rebecca 🇦🇺 :
Started at 18, I feel like every couple of years I've added another diagnosis to the list which is now so long I have to have a note on my phone cause I simply can't remember them all anymore. Currently in the angry phase cause everything feels like its falling apart and I'm just not coping with day to day life and I feel like everything I've worked hard for is going to be taken away 😭
2026-06-22 07:30:09
1
Alanah :
You are amazing! ❤️🩹
2026-06-22 06:20:50
1
Gabbs_gab :
14 and I completely agree I don’t really remember the grieving when I was younger and I don’t think I really understood it. It definitely got harder when things have added to the list since I have been older and I think it’s a combination or understanding more but also having more responsibility being an adult like work, life etc. definitely struggle more as an adult.
2026-06-22 03:39:40
2
OpalMagicArtist :
Hashimotos Thyroiditis at 6yrs old, I am still collecting diagnosis it's a continuous process ❤️
2026-06-22 17:19:20
1
Chloe Williams :
I've started focusing on compassion for myself day to day, hoping the acceptance arrives one day. Brand new concept for me 😅 💗
2026-06-22 11:18:57
1
clarethatsme :
ME at 9. Fibro at 13. Endo at 21. Adeno at 23. Acceptance was never something I went through as my body had no choice so in my brain, it just is what it is. I know that’s not everyone’s experience & maybe my brains protecting me! I’m almost 40 so it’s been a long time.
2026-06-22 20:12:17
1
Dan2112dash4gen❌ :
em how ya doing it's been to long since we chatted
2026-06-22 06:26:22
1
lanegrita67 :
I truly understand as MG and multiple autoimmune diseases so yes I have grieved for a long time am going to try clinical trials
2026-06-24 14:39:05
0
Sam Cocks10 :
diagnosed RA, fibromyalgia at 32 , im 51 and I accept its my life i no longer chase no pain thats not going to happen, I am greatful for every day
2026-07-17 12:23:12
0
Ev :
Do u have a good counsellor u couod recommend for my young daughter
2026-06-28 11:37:19
0
jasmineb.07 :
Diagnosed with MG when i was 7 and now im almost 19, tbh i dont remember as much when i was little but more recently ive looked back n seen how much better it got.
2026-06-25 14:44:28
0
laurettapeterson :
Small fibre peripheral neuropathy at 29 from taking an antibiotic!
2026-07-13 09:19:40
0
Helene 🍒 :
Diagnosed at 24, currently 32 and still struggling 😅 definitely had endo symptoms since 15 though.
2026-06-22 04:01:06
1
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