@savebabynoah: 21 WEEKS Still in Southampton Hospital Intensive Care Unit On Tuesday right after a lovely cuddle with Jac his heart rate started to race and his condition rapidly started to deteriorate His room filled with doctors cardiologists consultants and nurses and I sat and helplessly watched as they struggled to save our boys life once again He was put back into an induced coma reintubated and given lots of drugs to keep him stable I watched in fear as they attempted to fit another arterial line it was this procedure that resulted in him losing his arm and thank God that it was successful this time Two hours later Jac was in a steadier place and we are so thankful to the team once again for their intervention and for saving his precious little life That said he is making it clear to us that his heart is really struggling and it is looking very likely that his full AVSD heart reconstruction surgery is imminent Please do keep little Jac in your prayers as he likely faces some huge challenges over the coming days downsyndrome trisomy 21 t21 avsd heartwarrior heartwarriorbaby amputee limbdifference