I asked my GP about MCAS she didnt know what it was, she kinda brushed me off
2026-06-22 15:55:39
6
Rebel89 :
HEDS. MCAS, Fybro, pots has RUINED MY LIFE……….some medics believe it snd some don’t care. It’s so disheartening.
2026-06-25 22:28:27
5
Cara 🇬🇧 :
I have Adenomyosis and really struggling with rashes and now really bad mouth and tongue swelling. How do I get diagnosed for MCAS? My GP didn’t have a clue about the link with histamine and wasn’t helpful at all and told me to wash with antibacterial mouth wash which made it even worse
2026-06-23 21:28:22
0
Crazy Sane Banshee :
I have fibromyalgia, endometriosis, osteoporosis, psoriatic arthritis. Recently suffered what I thought was a hayfever flare up, worse than normal. Itchy swollen eyes(usually just itchy eyes) plus this time hives, which I never had before. Usually I take an antihistamine, it clears the itchy eyes for a few mths. This time I’m having to take them daily, and not helping.
2026-07-03 21:02:16
0
lisa :
i just dont know :-(
2026-07-20 17:33:19
1
MissLojo :
are you able to speak on histamine and estrogen signaling cycle? as someone who has endometriosis heds fibromyalgia pmos adenomyosis catamential epilepsy and iih, I have been focusing on this relationship between the increase in mast cells an endometriosis cell creates and its self feuling estrogen +/- histamine loop that the cells go through. Endometriosis does not equal mcas, but it can
2026-06-22 16:19:55
1
Henry Obst :
99.9999% of doctors: it’s just anxiety
2026-07-06 15:03:04
2
Cara :
are those blood spots - peteiche -:a sign of mCAS. ? I've started to get. I have fibromyalgia
2026-06-26 08:39:24
0
not.a.native.dane🌞🌝✨ :
I had a really bad flare with months of facial swelling that burned cracked and peeled about 3 years into menopause. it took 18 mo's and huge doses of IV steroids to stop it.
2026-06-26 12:26:12
0
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