Chloë 🕷️
Region: US
Wednesday 24 June 2026 13:53:14 GMT
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~.☆•°×Koré×°•☆.~ :
scared to fill out this chart cause it'll put into perspective of just how bad my health has gotten over the years :( I've lost so much to this damn illness it isn't fair
2026-06-24 17:06:30
265
Athlía 🥰 :
can you enable downloads in this post please?
2026-06-26 16:07:20
3
Toadally Autistic🦓🦽🎨 :
oh I'm so glad that our project picture is so helpful!
2026-06-26 17:34:01
0
RIKKI JUSTIS :
Literally “oh youre just flexible” like no my collar bones pop out of place if I cough too hard and I have glaucoma at 28
2026-06-25 07:59:18
75
hensoncat :
Where did you get this? I need this to be able to show my pcp, rheumatologist and whenever I finally see a geneticist 😑
2026-06-24 17:35:14
25
Chronically Kiara ✨ :
Can someone with EDS tell me if you get random right sided pains that always come back fine on bloods and scans ?
2026-06-25 09:37:56
23
Jessica Ann Tolsma :
need to add... sleep issues including obstructive and central sleep apnea, insomnia etc.
2026-06-25 15:49:28
16
Feli.the.Heli :
So I have had Myalgia for about a year now. My doctors are puzzled and nobody can diagnose me. They are looking at connective tissue ailments atm as I am hypermobile but what started me on this journey is a abnormal high score in my Anti-SS-A/Ro52(e) but I have none of the accompanying identification markers. Can anyone help?
2026-06-26 11:58:09
0
Lilly🫶🏻 :
pretty sure i have it and it runs thru my maternal side, but none of us have a diagnosis
2026-06-25 03:40:49
8
alizehwinter :
Girl! The way I saw yours and was ready to type where did you get this then scrolled to a blank one! What a girls girl! Thank you 🥰
2026-06-25 02:09:38
9
Miko 🧠 :
Thank you for this. I’m seeing a new rheumatologist next month and I want to have all of my symptoms ready cuz when they ask what’s wrong I don’t even know where to begin
2026-06-24 22:40:58
12
Krtti 🇨🇦 :
The fact that ive found this comprehensive list here and not through my dr is crazy talk.
2026-06-25 18:01:26
6
Beth :
Thank you for the clean version to screen shot!
2026-06-25 16:59:31
7
maddiegrace💕 :
I’m in pain all the time 😭
2026-06-24 15:03:10
12
Sy :
did not realize so many of my random medical issues i’ve been to ERs for on separate occasions are all connected (for reference i meet criteria for hEDS)
2026-06-26 18:31:09
0
<3 :
I have EDS and fibromyalgia too, I see you girl ❤️
2026-06-24 14:43:04
4
evamarie. :
Wait, I think I’m going to throw up. I didn’t know all of these things connected. I’m medically diagnosed with something from almost every category and no doctor has ever connected these dots 🫠 WHAT DO YOU MEAN?! 😭😭 I am genuinely so upset. What the fuck?!
2026-06-25 14:16:08
1
Nex Melrose ♾️🌈 :
where'd you get the list? i wanna open it on my PC ;-;
2026-06-26 09:05:26
0
sof :
im tired all the fckng time and everything hurts after doing the bare minimum, i hate this so much 😭
2026-06-25 19:45:45
4
Lauren :
Can you make this so we can download it?
2026-06-25 15:18:36
3
Tatyana :
Where did you find this checklist?
2026-06-24 22:19:41
1
miss__andryy :
The blank one for me? GOATED bbg🥰🥰🥰
2026-06-25 23:45:34
3
Samantha O 🇨🇦 :
and theres still quite a bit more that it can effect thats not mentioned here, it literally involves the entire body. I can't burp, I can shake my eyeballs on command, super itchy skin.. The blue scleras is such a weird one that I've asked so many Dr's about and they had no idea 😑
2026-06-25 06:25:21
4
murphy_the_rat :
first rheumo told me to lose weight and all will be fixed, second rheumo said all symptoms are consistent but I am too young for diagnosis
2026-06-26 08:33:27
2
Spanisheyez :
Yep 🥺🦓
2026-06-25 09:44:51
1
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