it’s genuinely terrifying and completely unpredictable we’re never able to have a clear image of what we will be
2026-06-25 00:54:22
4
mon111ka :
It’s so depressing too, I have lgmd2a and it makes me goal-less, ever since I knew the meaning of the diagnosis
2026-06-25 07:18:54
3
Beth :
Dr's appts, mobility/breathing devices, having to order food because you cant cook, paying someone to clean, take care of a whole ass house, paying someone to help you shower, dont forget bills. And if I lose my job theres no assisted living facilities for less than 12k a month on top of a 3 year wait list to get in. But hey at least once I lose my job Ill qualify for Medicaid😃
2026-06-24 23:13:53
4
Jenna-Jade Correia :
❤️
2026-07-15 14:06:58
0
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