lauren🎗️
Region: US
Wednesday 24 June 2026 19:30:37 GMT
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raebird625 :
So I watched your video of you having the uncontrollable shaking of your leg. I had a very similar incident happened to me very recently, except it wasn’t just my leg, but my entire body. It was my entire body that started convulsing and I had zero control of it. I too have the weird pinching in my neck shoulder. I also have had HORRIBLE stomach issues that will debilitate me for a week or more at times. I have been researching EDS for years because I have pretty much all the symptoms. But on top of all of that back in 2020 when I went in for my eye exam, they found swelling on both of my optic nerves. I saw Neuropthamologist as well as many other specialist. I then had a lumbar puncture (absolutely barbaric in my experience, I don’t know why they don’t sedate for this procedure) where they found out that my CSF was slightly elevated and they did loosely diagnose me with IIH. COVID hit and they then just completely pushed me out of the system and forgot about me. And I’m not kidding. I’m still trying to get someone/anyone to take me seriously. So now I’m going to be following your journey to see if they figure anything out because it’s wild how similar our health journeys are
2026-07-02 12:18:47
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Abdul Muhib Afridi :
♥️♥️♥️
2026-06-25 13:16:48
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