@_eliananana: an honest health update: I continue to struggle, but I have a plan and I’m optimistic for recovery #chronicillness #adrenalinsufficiency #postexertionalmalaise
Just had my 9am cortisol levels taken and it was 4.8. Still waiting to hear back from my endo bc i feel like complete crap.
2026-06-30 18:30:38
1
Rayofsunshine2026 :
Wow could you explain how impending doom presents for you? I get it alot but I don’t have adrenal sufficiency
2026-06-24 22:50:45
2
Erin Rackham, PhD :
Ugh I’m so sorry Eliana. ❤️🩹 I had to not go to our family reunion because the travel just would’ve been too much for me and I spent the whole weekend crying about it. It’s so devastating to not be able to access seeing family. 💔 Hopefully the three day regimen helps you bounce back a little! 🤞🏻
2026-06-24 20:51:33
17
Dr. Ashley Cooper, ND :
So sorry :( I’m a fellow AI girlie and feel your pain. It can take a long time for the body to bounce back after d/c HC
2026-07-16 01:54:55
0
Katie :
I’m so sorry you had to postpone your trip. I had to cancel my portion of an important trip this month from LC and the heartbreak that comes with it because you just can’t hang is so difficult to rebound from. Would you mind talking about the steroid elimination process and where you found more helpful info regarding LC patients? I’ve been on it for 3.5 years, at a low dose, but I would love to come off of it one day with doctor approval.
2026-06-25 03:15:08
6
Bree Cunningham🩵 :
I'm so sorry you had to cancel you trip to Albania. I just lost my grandfather unexpectedly and I can't travel to his funeral because I'm currently in a bad flare💔 I'm devastated but I am the one that has to survive the grief in my chronically ill body and I know that this is the right decision. I can't afford to crash any further.
2026-06-27 20:11:09
1
Allie :
albania will be here in the future! i’m sorry you’re struggling
2026-06-24 21:58:40
13
Maggie Mason :
Dammit. Dammit! Well, here goes. Fingers crossed for you.
2026-06-25 07:29:12
2
CH :
I’m so sorry you’re going through a dip right now. But it helps me to remain hopeful for myself because despite you going through dips sometimes, you’ve made insanely great progress over the past few years.
2026-06-25 13:03:36
1
poop brigade :
I’m sorry about your trip but. Good for you for canceling the trip. Prioritizing your health is always important in order to keep being able to do stuff out in the world and live a meaningful life however we can
2026-06-24 21:27:12
26
grace🩵 :
(Not suggesting something to you bc ik you know you best!) but do you have any thoughts on Integrative Therapeutics HPA Adapt? Like an adaptogen-based HPA support. I don’t have diagnosed adrenal insufficiency/haven’t done steroids, but my functional nutritionist has me on it. Sending you good energy friend. So sorry you had to cancel your trip but congratulations on graduating :’)
2026-06-25 18:08:28
1
Charissa :
Awww sorry. That’s such a bummer. I hate when I have to make hard choices like this.
2026-06-25 01:57:53
1
Lil_yana789 :
Feel you girl I just cancelled a trip to California
2026-06-24 23:41:40
1
Kayla :
I’ve never met somebody else who gets blurred vision with PEM before!!
2026-06-26 01:38:33
2
Grace Miller41240 :
That genuinely takes so much self control and I’m sorry you had to cancel your trip! 🥺 Proud of you for pacing, know it’s hard, and I’m sending you spoons!
2026-06-25 03:31:28
1
S. :
I’m so sorry! How are you doing mental health wise?
2026-06-25 02:22:24
0
NikslittleNaks :
did you get blood testing for your adrenal insufficiency? super curious about this … so sorry you had to cancel your trip. Sending you lots of healing energy 🫂
2026-06-25 01:47:11
1
merlinprinny :
sorry about the trip & the setback 😞💔 hope it's a minor blip in a much bigger journey of wellness + hoping you feel yourself on the ho again soon!
2026-06-24 22:22:25
2
copingwithbrooks :
That’s a bummer. Sorry about the trip.
2026-06-24 21:21:45
3
arreloi :
I hope you'll feel better soon 🫂
2026-06-24 22:41:51
1
VinoBambino :
Same it sucks
2026-08-18 07:12:40
0
Beareal :
I just got diagnosed and freaking out. Please help me. Any advice is appreciated.
2026-07-09 00:36:54
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Dr. Ashley Cooper, ND :
Question, why would you discontinue steroids if you have adrenal insufficiency? For most, that would be life threatening.
2026-07-16 02:00:05
0
C :
Going through this right now. Feels like system is shot and unregulated. Trying not to view it as a step back
2026-06-28 05:23:03
0
no :
What doctor is overseeing your care?
2026-07-12 03:51:44
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