@drgracedpt: Replying to @Jen #ehlersdanlossyndrome #hypermobility #dysautonomia #movement #fyp

Dr. Grace | hEDS, pelvic floor
Dr. Grace | hEDS, pelvic floor
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Region: US
Thursday 25 June 2026 00:12:00 GMT
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ima_jenn
ima jenn :
Feldenkrais is one of the few things that has helped me Dramatically. You can often find a PT that has Feldenkrais training & them insurance will cover it.
2026-06-25 05:51:16
132
cannolibannoli
Emily :
yep, doing Feldenkrais from home through Feldenkrais Access on youtube changed my life.
2026-06-25 05:48:46
78
chroniclestowellness
Stephanie :
Pilates. Reformer Pilates. Always reformer Pilates.
2026-06-25 14:14:51
276
terrataco
terrataco :
wait... are you driving?? why are you filming?!?!
2026-06-26 01:19:14
103
waitingforutah
Christal Wagner :
I took a Feldenkrais class for the first time in 2015 and ive been searching for that feeling of relief again ever since.
2026-07-10 11:18:39
14
haleylunamaine
haleylunamaine :
This and visceral manipulation
2026-06-26 13:02:49
22
axoliittle
axoliitle :
I found a PT fresh out of grad school and she was immediately revolutionary for me. she started training my brain somehow and this started to stabilize
2026-06-25 03:27:06
29
ghostiegirlie0
Ghostie Girlie 👻🍉♿️🏳️‍⚧️ :
do you have advice for someone with hEDS, dysautonomia, possible MCAS, and severe ME/CFS because I’m at a point where PTs are scared to even do anything with the ME/CFS factor and I am really getting discouraged
2026-06-28 15:29:27
7
michelle.banja
MichelleLee :
I actually stumbled upon this method and tried it along with wearing shoulder and si belt posture supports plus added in a little weighted hulahooping and holy cow. I'm actually feeling my posture stack and my internal girdle and my internal hip muscles activate and operate appropriately in real time for the first time in my life. I can honestly say people that have never experienced this have no clue what it's like being in a hypermobile body that has no idea what interception or proprioception feels like or the damage it causes to the mind and body when it's not working properly. It's a total mind f*ck when you feel it turn on but it does help you understand why your body has worked so much harder than everybody else's for your entire life and why you could never achieve the same results as everyone else.
2026-06-25 15:48:32
25
lmnoogrstuv
Mnlopqrstuv :
What about Lagree?
2026-07-06 17:05:52
4
arealboyo
Pinocchio :
Is it normal to “run out” of balance? If i do something that requires me to stabilize a lot (like a tightrope except not that), right after I can barely stand
2026-07-22 02:41:46
4
ravenclueless
Brittany K :
When I went to Mayo for treatment they recommended tai chi. Seems to be a similar idea, slow, controlled, intentional movement
2026-06-25 14:21:49
78
cryonthetrain
cry on the train :
Are you driving? Please don’t do this
2026-06-27 03:47:10
11
brilliantlatina
Diana la Autista :
Look up Restoration of the Body Chain Linkage. Work with a Postural Restoration Institute physical therapy. I think it all starts with mandibular posture which dictates the position of the head, neck, and subsequently the entire spine and pelvis.
2026-06-26 06:30:33
5
siliconsepulchre
siliconsepulchre :
Do they have this for kids? My AuDHD kiddo is really struggling with body awareness and coordination. He accidentally hurts himself and other kids all the time but really I just wish he knew what was going on with his own body better.
2026-07-16 17:49:26
1
lipedemama
Kelly | Lipedemama :
Checking in with Lipedema too
2026-07-12 16:51:55
6
notyourneurotypicalgal
zoey vagner :
feldenkrais was something i was fortunate to receive pre diagnosis and i totally forgot about it but it made my body feel so good
2026-06-25 13:59:36
16
allgoodca
C :
I’m so sad. The nearest to me is 75 miles away.
2026-06-25 14:04:24
3
leerion
leelah Orion :
Why do you all only talk about Heds but not HSD like we don’t have the same if not similar issues. But because of a messed up test we didn’t get the formal Heds diagnosis. It’s even more isolating. Not only do our docs not take us seriously but our own commmunity or what should be our community isolates us.
2026-06-26 19:09:22
3
maya_stokes
maya stokes :
I am SO happy I found your account. I’ve struggled with chronic pain from my hEDS for years and have felt like I’m fumbling in the dark
2026-06-26 15:57:52
2
genxhippie
💙💛GenXHippie 🆘️ 🇺🇸 :
I know I'm hypermobile, though I don't know if I'm hEDS. I've reached the point where I've got bone on bone arthritis in one hip, just under that in the other, and advanced arthritis in both knees. Would this method be helpful for me or is it too late?
2026-06-26 18:10:32
4
skippyy4
Skippyyyyyyyyyyyyyyy :
so helpful and genuinely will be looking into it but also pls don't film videos in the car 😭 so stressed i could barely listen
2026-07-12 17:24:18
3
readbynature
Beef_slayer :
THaTS WHY I TOOK TO ANIMAL FLOW😅 its basically the same concept but more fun and playful
2026-06-27 19:32:37
2
autumnsillusion
𝔅𝔦𝒛 ☥🫀 :
It’s always these damn movements that would help my hEDS the most but I can’t do them cos I had 14 segments of my spine fused lollll. We stay suffering!!
2026-08-05 23:02:04
1
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