AlexAndTheGutDrama
Region: GB
Friday 26 June 2026 14:43:29 GMT
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ExistentialMagpie :
Very sorry your going through this. Definitely reach out and inform your surgeon/doctor regarding your condition. Go to the hospital, inform hospital staff to see what options are available besides steroids. Do your best to protect yourself from germs while out there as getting sick could push back your surgery.
2026-06-26 23:28:32
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Opalfruits :
I have Ulcerative Colitis and i found a coffee a few years ago that helped stop the bleeding it's worth a try. It's the nescafe with the red top and I have it with skimmed milk. None of the medications work for me and actually make me feel worse but the coffee stops the bleeding when I drink it 🤔. I hope this helps you and anyone else that's suffering.
2026-06-27 10:27:23
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m.s_ibdandme :
I don’t understand why they would let you get so bad before a surgery. Surly that would possibly bring on an emergency situation? Myself and my brother were on them before stoma surgery. I would get a second opinion because you can’t be left with worsening inflammation for a month
2026-06-27 09:10:50
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Teedhar :
The heat wave (40degrees in France) is the worst that could happen for me with Crohn. I don’t know if the heat makes you worse. I hope you’ll get better soon 🙏🙏
2026-06-26 16:45:36
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CG :
If you go to hospital they will probably still give you IV steroids anyway if it helps, they won’t let you get critically ill. If it gets so bad they might give you an earlier surgery.
2026-06-26 15:22:14
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Marissa Beth :
😭 it might be best not to wait. I’m so sorry you’re going through this.
2026-06-26 14:49:20
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BeckyHoult :
I was given infliximab infusions to counter coming off steroids because I was similar and couldn't cope weaning down.
2026-06-27 20:42:27
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Martin :
I was on 20mg as a maintenance dose up till the day of my surgery so they will likely treat you with steroids
2026-06-26 15:39:10
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Kathryn :
Go to A&E. IV steroids. I was losing blood for months before my surgery. I was on Pred for months before it too.
2026-06-27 05:26:27
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Brett Rowland :
I never fully come off the steroids before my surgery . I was on the reducing load . I got down to 25mg and then I had my surgery
2026-06-27 07:35:24
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🐝 | IBD | Ostomate :
They had me on steroids up until my surgery (which was emergency) they will give you them if needed but they may do what they did with me and do your surgery in two parts. The steroids slow down healing so I only had the ileostomy so far. Waiting to have the next part of surgery. Good luck, definitely go back to hospital. I kept pushing it off and had a bowel perforation. Good luck 🤞 x
2026-06-26 17:31:39
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AlexAndTheGutDrama :
I will change the shirt before hospital 😅 can't be representing the little pecker club in a&e 😂
2026-06-26 14:48:43
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PeterByrne :
I had a couple days before my surgery where I had to taper off really wasn’t nice they’ll probably give you a transfusion if it’s really bad
2026-06-26 16:41:21
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B :
Look into natural indigo and slippery elm. Take it every morning and night
2026-06-26 20:19:51
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theibdguy :
Well I’m on iv steroids every 8 hours until my surgery next Friday 🫠 go get sorted lad
2026-06-26 16:46:48
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mistcall :
I’m trying to understand - does it literally come out of your bum for a little while like a nosebleed?
2026-06-26 14:47:34
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Coco :
Aww no way. You're getting it rough mate. Hope they can help
2026-06-26 20:13:54
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lisaxoxo1310 :
Ah mate , you have it rough don’t you 😔 I hope they sort it one way or another
2026-06-26 21:15:53
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Jodie | Chronic Chaos 🎗️💛 :
How are you doing? Can they do short steroid dose until surgery to help? Sending positive vibes.
2026-06-27 13:22:17
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Lexi :
Omg!!!! Are you still doing the stoma?
2026-06-27 23:46:29
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