@mackenzies_eb_journey: This month has been rough. Like… so rough. The medical mama life is kicking me in the butt right now and I’m letting myself sit in the feels of that. But… it’s so worth it. These memories, these happy moments, make every second worth it. And as hard as this life is, I’m so lucky to do it. #heytheredelilah #reflexion #medicalmom #griefjourney #worthit

Mackenzie’s EB Journey 🦋
Mackenzie’s EB Journey 🦋
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Region: US
Sunday 28 June 2026 18:18:41 GMT
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junieluvsstarwars
🎀🦖🦕⛧ Juniper ⛧🎀🦖🦕 :
What does she have? I’ve never heard of it. I like being educated on stuff.
2026-06-28 19:22:20
775
redtalivan
Red Talivan :
I really really really hope you find a solution to this but for now she's the cutest zombie ever🥰🥰🥰
2026-08-23 23:21:30
911
cameronbrown406
cameronbrown406 :
what the other guy look like
2026-08-23 19:46:16
1106
twinmama94
TwinMama :
My 4yr old says "shes so pretty, I love that baby" 😭🥰
2026-08-23 20:28:56
534
colettetassin
colettetassin :
Please try oatmeal baths. You can look up a homemade recipe on it or if you’re ok with commercial type brands Aveeno has a really good quick pack that can at least give her some sort of soothing. I can swear by Aveeno oatmeal bath packs has helps with a lot of things for not only kids, but as adults. I am a mom of two and I always have a staple of the Aveeno oatmeal bath packs on hand just in case you can do your own research but I’m telling you I swear by that.
2026-08-23 23:27:16
6
hunterg921
hunterg :
not being rude or offensive but what medical condition is that
2026-08-25 19:12:42
3
mberthcsi
MarissaB :
The prettiest Mckenzie 💜💜 we need a cure for all EB babies. 😔
2026-06-28 18:28:09
96
ziftyking4life
zifty :
is it getting worse
2026-06-28 18:36:19
18
hector.troy1
Hector Troy :
What happened
2026-08-24 02:30:08
3
sawwahpaw
Jones :
Look at how happy she is!! You’re doing good mama!
2026-08-23 16:47:58
38
valia.4.26
VAlIA :
ربنا يشفيها يا رب
2026-06-29 16:54:55
181
chriswillmott656
chriswillmott656 :
Looks like one happy child. She must be surrounded by love and it shines through. Keep up all the hard work mom and Dad, I'm sure you guys will move mountains for her.
2026-08-15 03:22:03
48
caseymerollllin
caseymerollllin :
From one medical mom to another- you’re doing great! 🥰
2026-06-28 19:23:17
9
morelesuem
Morgane :
My heart breaks for you and your family. Im so sorry your baby has this. Sending you love and healing
2026-07-06 01:17:19
19
semiragerta
🇸🇾أنا البنت السورية 🇸🇾 :
She will be okey 🥺
2026-07-02 20:51:29
15
denisefalkenberg
Denise :
Poor cutie
2026-07-04 01:22:35
5
zenira.suzy
Zenira :
God please help them
2026-06-30 17:54:07
16
sjl441
SJ :
doing amazing mom looking beautiful as always miss mckenzie 🥰
2026-07-06 17:21:52
1
maria.amaral.chat
Maria✨🧡 :
2026-06-29 18:26:19
81
s_vash_21
V🐾 :
Get well baby🥺❤️‍🩹
2026-06-30 20:06:37
10
ena_andy
༼ つ ◕_◕ ༽つ 🌟I : A (◕‿◕✿) :
Poor baby. May Allah make her strong and recover from this illness. Amin
2026-07-02 08:55:55
5
ungreatfuldead
Jane Doe :
the blood stains on her clothes always make me feel so sad for her
2026-08-23 19:29:45
10
danielle01619
💕Danielle💕//CNA///LPNLOADING :
Omg I have simplex! She’s beautiful!!!
2026-08-24 01:50:50
23
havenshoney
honeyto2 :
Sending prayers 🙏
2026-06-29 16:06:48
4
kaywhy82
kim🌸82 :
Sending prayers and hugs! 🙏🏼❤️
2026-07-01 13:32:19
3
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