@drgracedpt: Replying to @rose_no_thorns #hypermobility #ehlersdanlossyndrome #heds #pain #fyp

Dr. Grace | hEDS, pelvic floor
Dr. Grace | hEDS, pelvic floor
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Region: US
Tuesday 30 June 2026 01:00:08 GMT
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kschlang
kschlang :
I’m obsessed with my SI belt, especially for long walks. I constantly have SI pain and it helps so much!
2026-06-30 19:56:38
449
beetok77
Bee 🐝 :
Maybe show where this SI belt goes on the body?
2026-08-15 04:51:28
43
maven_dot
Maven :
I love mine! actually I have 2, one I keep in my car and one for home lol
2026-09-26 23:25:09
0
avianaceleste3
Aviana :
My larger joints like my hips and my shoulders don’t usually cause me any pain
2026-09-26 21:23:34
0
softcabra
cabra :
im audh and hypermobile, how can I tell what “feeling symptomatic” means? what are the key symptoms to question heds?
2026-06-30 22:46:48
1401
d.matt09091
d.matt09091 :
Me waiting for her to show us how to use it 😅
2026-07-02 09:53:01
750
barbaramcleod
Barbara McLeod108 :
I have a chubby apron belly. But I really need SI belt. Any suggestions for is belly hippy gals?
2026-06-30 04:20:25
181
ihave2go
Periwinkle :
I’m worried it will make my muscles/ligaments even weaker because i’m basically using it as an exoskeleton, no?
2026-06-30 12:19:43
143
roanbrinnic
Roan Brinnic :
ok stop telling us WHY and show us HOW its worn!! I can't fucking figure out positioning of the damn belt and no one shows how to wear it, where it's supposed to be felt, what it lines up with, etc!
2026-07-30 09:20:09
74
hottdonnaradio26
De🇨🇦 :
Can you tell us how where to find plus-size ones? As someone with Lipedema and EDS this is such a difficult find.
2026-07-01 03:09:03
13
pinfectious
Summer Violett :
It feels impossible for anyone with a large body to
2026-08-25 19:09:21
7
setter.smurph
setter.smurph :
My problem is that I have an apron belly so the belt folds and becomes painful on my skin (even through clothing) or shifts around to the point that it’s not effective
2026-07-22 08:05:08
21
firstcanadianfemalepope
First Canadian Female Pope🇨🇦 :
I want to know how to wear it and what “symptomatic” would mean because I’m just me and I always feel like shit.
2026-06-30 22:19:41
71
leahpatt
leahpatt :
They don’t stay on though. They slide up with any movement.
2026-06-30 01:14:28
10
rachelstovepipe
rachelstovepipe :
someone once recommended wrapping it around my thighs for car rides. I do the same thing at my desk on bad days too. using it this way has completely changed my life
2026-06-30 11:02:31
11
alphabet.city
ariana brooke :
when i wear it, i get pain in my hip socket joint even when i have symptoms in my SI :( i cant win.
2026-06-30 07:09:16
6
32normzeev
Savannah Grace :
what bout fat ppl ive tried so many joining 2 ive given up looking for heds support that fits or works for me
2026-08-20 07:33:31
5
user16463229
user1646901138555 :
Is this why if I overdue it like when I’m hosting a party I literally can not walk the next day and it literally takes me a day of resting in bed to recover
2026-07-25 02:49:40
6
izy.doubleuu
izy.doubleuu :
I know I am hypermobile (currently trying to find out if it is EDS) and everything is have symptomwise i only know is not normal due to social media… so i kinda don’t know what symptomatic means cause everything is so normal for me and I don’t know it any other way. Its kinda weird cause it has been my normal
2026-07-08 21:59:34
22
themomuwishuhad
themomuwishuhad :
I’m sure there are other comments asking—any chance I could get brand recommendations or links? Overwhelmed with choices on Amazon (to the point where I’ll give up looking— it’s been on my radar for months— I need to feel better!). Thanks so much!
2026-07-08 04:23:12
11
plantmadredhead
plantmadredhead :
I have one of these but it CONSTANTLY rides up. Doesn’t matter how tight or low I I put it, a few steps and it’s moving up 😮‍💨
2026-07-01 21:10:00
7
thehomemakershustle
Stacy | The Homemaker’s Hustle :
I’m undiagnosed, but have suspicions about hEDS. My SI joint has ached for months. I put an SI belt on for the first time yesterday and have never felt so stable. My feet, knees, and back popped like crazy every time I moved, but the relief was worth it.
2026-08-04 12:47:49
13
coatsjacob
RoadTo100-Jacob Coats :
Can you explain how this works for long trips? I’m an athlete and I take 8-12 hour bus rides and I’m super restless
2026-07-27 05:51:14
5
bossibootz
H :
Could hEDS be the reason I’ve never been able to run properly or do monkey bars/climbing rope?
2026-07-02 09:58:59
9
merrrgle
merrrgle :
can you recommend the right way to wear one when you have an apron belly?
2026-06-30 16:13:48
6
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