@chronic_truths: On Friday night My heart rate dropped to 45 and I was about to pass out. We were at baseball game. Felt a weird pinching sensation in my neck and shoulder. I was feeling very out of it. I felt super weird and weak. On the way home in the truck I was having weakness in L arm and leg. Then I started having this one sided body convlusing in my leg for HOURS. From 9pm- 5am ish I can’t control it and It wouldn’t stop. It was really painful. I couldn’t walk or stand it was so scary. Heart rate was chilling in the 140 -160 range all night long in the emergency room. On Saturday I kept feeling very lethargic all day and had an another episode of leg tremors/shaking. Sunday I went back to a different ED for the same reason with leg shaking and tremors and I still can’t walk normally. One doctor said It was FND. The other one said just a very complex hemiplegic migraine. Another one said issue could be coming from my back/hip. Other one said my neck. I already have issues in both of these regions due to EDS. So despite for help. It’s Frustrating doctors keep saying different things. I understand it makes it harder since I can’t have an MRI due to an implant. But I appreciate any prayers I can get. I’m desperate for proper answers and a quick safe recovery. #chronicillnesse#medicaltiktokn#fndo#complexmigrainese#neurology

LifeWithSchnauzer :

my fibromyalgia was like this in my bad days. so they told me to quit my job i the health sector, rest and listen to my body. after 3 yrs of recovery, the shaking stops.

Lynnsey Chandler :

So I’ve got the same. Heart rate is controlled by propranolol ER now. My doctors said it was a complex migraine that caused mine. My head never hurts, just these weird symptoms and a bunch of others. Also have disc issues but they say it isn’t from that. Hope you get some answers!

lauren🎗️ :

Hi everyone thank you for all the support and sweet comments 🥹. We still don’t have proper answers yet. I was told this isn’t FND and this could be coming from my cervical instability. Does anyone have similar issue with CCI and leg tremors and gait.

Mindfulmonster :

lookup dysautonomia

Anna chap :

My friend had a spinal stroke not so long ago… please please please make sure they are checking for that

tanaa :

Praying for you

Mand’81 :

They didn’t admit you for observation or testing? Thats cruel.

Oxfordbp :

That’s neurological. Have your cervical spine scanned.

nina😝❤️❤️ :

fill this glass with love❤️

Ķort🫦 :

Definitely a nerve problem I had this I had 3 back surgeries I pray you get the help you need

Heather Patterson :

Prayers for you!

mamabearextraordinaire1 :

I’m so sorry you’re going through this

Sunshine :

🙏Sending prayers

Karen Guarnieri :

Prayers

pops🥥 :

unclaim hope your okay

nessatubyla08 :

God bless

Savannah young :

We may not know each other but I’m here for you and I hope things get better for you

Curtis Henley :

Sending prayers

🏹🏹🏹 :

꒰🌸꒱ Kate ♡✩₊˚.⋆☾⋆⁺₊✧ :

I was in the ER last week with tachycardia and just thinking to myself… there’s people out there who have it much worse than me. my heart is with them. my heart is with you, dear stranger. 💖💕💖

paulina <3 :

i’m having you in my prayers ❤️

perhle_🇮🇹 :

Gott soll dich beschützen ❤️

talitha ₊˚⊹♡ :

Sending hugs and prayers!!🩷

reneesharakglover :

Sending prayers for healing.