@ashluv08: so many things can trigger makayla's seizures it's so scary because a lot of small ones can cause a big one 💙Angelman syndrome #disability #twins #specialneeds #seizures

Ashluv
Ashluv
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Region: US
Wednesday 01 July 2026 02:10:10 GMT
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victoria.katerina
Victoria Katerina 🩷 :
How are you able to tell if it's just a seizure or if she's zoning out? I know she is nonverbal so how can you tell? I'm genuinely curious! I love Makayla 🥰
2026-07-20 04:13:31
18
roistme
Maddie :
the extreme heat does seem to trigger neurological conditions. I've had back-to-back migraines, the entire heatwave
2026-07-01 03:56:00
358
makaylanelson427
🩷🩷Makayla🖤🖤 :
I do have seizures but I am seizure free and I out grow them
2026-07-19 02:30:05
10
savvyamericanguy
Levi :
Haven’t seen her cross my screen for a minute. I hope she’s doing OK
2026-07-01 02:57:45
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xtheunderratedyouthx
⃟ :
How can you tell the difference between absent seizures and just Makayla zoning out as most teens do? I’m learning a lot from your page 🥰
2026-07-01 12:59:23
92
nightvector1990
Night Vector :
how old is she?
2026-07-01 06:53:03
0
juxtaposed_doll
Melanie :
Sometimes concern from my loved ones comes across as frustration. I personally appreciate a calm tone when I’m being coaxed out of seizures . Confusion from the seizure can make me irritated. You guys are very considerate of her 💖
2026-07-01 03:19:08
22
jenniruth
Jenni Ruth :
My husband has absence seizures. He had 2 whilst driving. It was so scary. Thankfully he is medicated.
2026-07-02 13:28:09
10
carolbrill2
carolbrill2 :
my grand daughter suffers absence seizures. Singing along while playing her favourite music seems to pull her out of them quicker than emergency meds ever have .... ❤️
2026-09-01 21:14:21
0
lilah2cute6
￴ ￴ ￴ ￴ ￴￴ ￴ ￴ ￴￴￴￴￴￴￴￴￴ :
Aw hope she feels better and has less seizures
2026-07-01 02:16:24
24
thenameisadore
adore :
awww i hate heat so much man 💔
2026-07-01 14:52:27
16
oliviaalarcon580
Olivia Alarcon580 :
She is as beautiful as ever. Continued prayers for healing.n
2026-07-01 02:58:48
16
.r.o.j.o._
REJ :
She’s so beautiful
2026-07-18 00:42:24
4
av3strd
av3strd :
Have you asked her doctor about pills ? :( I have epilepsy to that must suck mine are medicine controlled but meds don’t work for everyone
2026-07-03 00:44:31
3
officialdiana
officialdiana :
She is soooooo beautiful💞💞💞
2026-07-01 05:33:18
5
arambula.66
Gracie Lou Freebush :
Ash you guys are thee BEST parents EVER 🥰🥰🥰
2026-07-01 06:19:14
5
doraelizondo81
doraelizondo81 :
Poor sweetheart
2026-08-26 20:50:47
1
janetdittman
user6520008638348 :
Such beauty
2026-07-01 18:51:31
2
hollylynn35
Butters&Biscuitsmom :
God bless her🙏❤️
2026-07-01 23:21:07
2
colbywicker
gtommysilver :
praying hope she feels better .
2026-07-01 03:05:13
4
loribug
Lori Garza 🐞 :
Would ice packs help? When I’m outdoors doing yard work I put those migraine head ones & other ones that you can attach to your body? Just a thought? Perhaps not directly on her but near her? Or patting her down w frozen towels kept in a little cooler?
2026-07-20 16:44:08
2
raymondgarcia2802
Raymond Garcia2802 :
May God bless her and you parents
2026-07-25 16:24:36
1
readitsouronlyhope
Read📚It's_Our_Only_Hope :
Would cooling towels, rechargeable fans, and or cooling vests possibly help her heat induced strokes?
2026-07-20 06:24:11
1
jericho1966
Jericho66 :
Bless this darling child ❤️❤️❤️🏴󠁧󠁢󠁳󠁣󠁴󠁿
2026-07-01 14:41:37
1
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