@hannahgouldingg: Please share. If this helps even one person understand ME/CFS a little better, or another feel understood, it’s worth sharing 💘 #chronicfatiguesyndrome #chronicillnessawareness #chronicfatigueawareness #chronicfatigue #fyp
Anyone with mecfs seeing this try the Perrin technique it’s helped me go from sever to almost symptom free 🫶🏻
2026-07-01 22:33:48
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Affordable Solutions 2 :
trying to get diagnosed is so difficult I also have fibromyalgia and fnd xx
2026-07-03 17:14:25
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eleonora ljungman :) :
it’s hell. I have both at the same time. 4 years now with glandular fever:(
2026-09-20 19:21:42
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Rhialy5 :
“Are you better yet?” Is the most common question I get asked. Oh and “so what are you doing about it?” ☹️
2026-07-02 10:43:46
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Adina ❤️🦋 :
i live with chronic fatigue dince 2020. it is like a horror movie
2026-07-01 15:36:32
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Leeann :
wait... its temporary? please tell me this is temporary. I want my life back 😭
2026-07-09 23:00:02
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ChroniclesofME💜 :
Best thing to use its proper clinical name on ME it’s the name Cfs that creates so much stigma for us speaking as a sufferer from 20 years and lack of support and understanding thank you for raising awareness of what we go through 💜
2026-07-01 22:59:55
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Kirsty Shead :
i have this its awful 😖 it robs ur life !!!!!!
2026-07-09 18:20:45
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bee! :
ME is such an awful condition to live with :( i hate that so many people don't believe me, or think that since i'm young i can't be this ill!
2026-07-04 00:42:47
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Amy:) :
My manager said to me yesterday “don’t let your body get confused with it just being a hot day and not your fatigue” I was about to cry because I was so tired.
2026-07-10 22:06:17
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charlotteandtheboys :
I had glandular fever and then that went on to chronic fatigue and fibro and now potentially pots 😫 33 year old grandma with fully fledged dementia and the body of a 900 year old 🙃 yay!
2026-08-04 20:47:33
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hannahgouldingg :
Just to clarify - M.E is the preferred term for this! For the purpose of this video, for the on screen title, I went with the name that most people recognise it as on socials. But to raise more awareness… it is called ME
2026-07-05 00:53:53
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yourgirlcharl_ :
Thankyou for sharing this ! Is there anything that helped you improve would you say your fully recovered now ? Xx
2026-07-01 22:23:31
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enomanika :
reminder that whilst ME/CFS can be invisible for one person it is not invisible for all people ❤️
2026-07-02 12:12:01
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Katryna♡ Mum and nail tech♡ :
I got diagnosed with FND, chronic fatigue syndrome and Fybro, on the same day last march by my neurologist after all my physical scans came back as inconclusive😢 it was nice to feel like i had a reason and its not in my head, but also i feel like the people around me dont realise why I am the way I am, or mock me for complaining or being tired ect. mine was also caused by MONO/glandular fever that I had when I was 16, it showed up im blood the neurologist took, ita crazy how one disease can ruin you for the rest of your life💔😩
2026-07-30 09:30:35
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GriMsWife 🇬🇧📚🍉🏳️🌈AuDHD :
I think this is why I just get 4 hours as it doesn’t matter if I have 4 or 12 I feel the same :/ rather doom scroll and rest
2026-07-02 22:40:26
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Bronwyn :
ME is so awful, i wouldn’t wish it on my worst enemy. I’m 25 and have been diagnosed since 14 ❤️🩹
2026-07-02 16:12:58
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Chronic Chaos :
Thank you for speaking about this. It’s so debilitating and frustrating 🥺❤️
2026-08-25 19:19:41
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becky_belle94 :
Would really appreciate it if you could do this video while calling it M.E (people hear chronic fatigue and think tired 😅)
2026-07-03 22:23:30
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claire hardy & pipes 🐶 :
I find the pain is something u get use to ! But fatigue isn’t 12years 28 when diagnosed , I think I explain this what you have everyday coz I do work n mask xxx
2026-07-02 19:15:59
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Lisa Gothika :
Ive been diagnosed for 11 yrs and no one understands
2026-07-02 20:05:30
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Swayonline :
Thank you for raising awareness. I get too tired to eat. Chewing just feels too much. It’s hard to explain that to anyone. Gravity feels so strong I can’t move 🙈
2026-07-08 13:23:10
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Sophie Drewicz | Photographer :
I’ve had M.E since 2007. It’s so physically and mentally draining. 😴😪
2026-07-02 23:42:10
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krapa75 :
Are u healed ? ‘Cause I still don’t understand if it is possible or not! I got my diagnosis in novembre and all the doctors said me there is no cure! I live in constant pain! Before I was a sporty woman, now I’m housebound since 7 months😫
2026-07-11 15:59:09
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Millie x :
i currently have suspected cfs and i’ve been struggling since i was around 14 but only really realised the patterns and that it isn’t normal more recently. went to the doctors in maybe march and they said they suspect it’s cfs but can’t do anything and i dont ‘meet guidelines’ because im 17 and ‘not old enough’. is there anything i could do to push for a diagnosis or anything even for abit more advocation in different environments and a set on this is the problem xxx
2026-08-05 23:47:09
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