@darcies_story: This is just a tiny snippet into Darcie’s life and this isn’t even a bad day. This is what living with EB looks like, day in and day out. The dressings, the pain, the tears, the exhaustion… it never really stops. As a parent, watching your child go through this is heartbreaking. You’d do anything to take their pain away, some days it just breaks you. But all you can do is be there and keep going. Darcie’s always so positive on here but this is our reality, and it’s why we continue to raise awareness for EB. #EBawareness #fyp #foryoupage #babytok