brit
Region: US
Friday 03 July 2026 06:48:48 GMT
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amerie :
i asked for them to test me for hypermobile eds but they ruled out the eds part since its genetic, usually comes with other diagnosis’s, and there isn’t really any official blood tests to tell you that you have eds exactly. they did a few physical tests to see my movements and said i just have hypermobility and not necessarily ehlers danlos syndrome. i have all the same symptoms as you and IBS as well! i got tested through a genetics specialist and then later went to a pain management doctor and was diagnosed with fibromyalgia. i do know though that pots goes hand in hand with eds very heavily. there are also many different categories of eds, hyper mobility being the most common. u seem to meet the criteria for having ehlers danlos syndrome so i think u might have it! also funny cause i thought i was just like this cause i danced for over half my life 😭 but definitely nottt and i hope you get answers! unfortunately theres also not a cure or specific treatments for it but the next step would be controlling the symptoms that are annoying/painful. personally they put me in physical therapy and had me use supports for my knees, and encouraged weight training for muscle building for stability!
2026-07-03 07:07:31
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Found it First :
Why is it embarrassing?
2026-07-03 07:00:39
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k :
bro your skin goes out so far & your trachea too😭 that’s so scary. I hope you figure it out soon!
2026-07-03 10:45:39
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