Erin Rackham, PhD
Region: US
Friday 03 July 2026 21:42:47 GMT
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Nightsinger 🌎🆘🇺🇸 :
Wait. Do other people with hyperadrogenic pots also suffer chronic nightmares?! Mine are every single time I sleep, and they’re vicious. 😭 Would guanfacine take nightmares away?!??!
2026-07-05 06:19:48
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Amberlee 🦋 :
Guanfacine made me soooo fatigued
2026-07-03 23:38:53
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Shannon Walter Mesne :
Hi I too have hyper POTS! I take 1mg extended release at night it took two weeks to adjust but it has been amazing for me! I still have moments of high heart rates but I haven’t gone above 145 since starting it! I hope it continues to work for you!
2026-07-03 22:44:28
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laurabergesonart :
How long did the dizziness and vision symptoms last?
2026-07-04 00:48:41
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Survivin & Vibin :
Hey! I’m so happy to hear you are slowly doing better. You mentioned Abilify, that can worsen POTS though right?
2026-07-03 22:12:49
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saisx1 :
How do u get 0.25?
2026-07-19 17:16:07
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RedefiningRachael :
They had me try it with my ADHD before they would let me use a stimulant and I almost fell asleep driving home at night. It was awful! I hope you have success on it!
2026-07-04 13:21:19
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Nelda ❤️ :
Thank you so much for sharing these updates!! To know there’s something out there that could help is just amazing.
2026-07-11 15:56:24
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tookind9 :
Do u have binocular vision? Have u taken a visual contrast sensitivity screening?
2026-07-04 19:58:17
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mumo3bbs :
girl, I am watching your progress so intently. please give daily updates for a few weeks, then I might got try it for myself!!!! it sounds magical
2026-07-05 16:02:58
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Mindfully Living A Kind Life :
I am on day 2 going into night three of .5 mg once at night and I’m having a few negative side effects like constipation and bloating and headaches and dry mouth but my mind is slower and quieter, my focus is a bit better, and I feel much calmer and able to regulate my emotions better thus far. It’s cool to hear your experience so far too ☺️
2026-07-04 03:31:33
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sanctuaryranch :
I’m new to the long covid clinic and so I’m just learning about all of this as it pertains to me. Thank you for sharing your experience! I hope to learn more about this topic and how to understand how to help my body heal.
2026-07-04 17:00:07
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remi._.1738 :
I’ve been diagnosed with pots since 2020. I know that I prob got pots from covid and 6 years later they still can’t figure out what’s going on with my brain or heart 😅
2026-07-04 03:37:05
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dazzling.katie :
I have the same type of POTS as you do. Guanfacine helps with adrenaline surges but gives me a headache and a weird kind of drowsiness. However, when I can’t handle the adrenaline, I have no choice but to take Guanfacine.
2026-07-04 04:23:22
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thekellyjayne :
Just to share my experience in hopes it helps others - I take 1mg at night to avoid the sleepy side effect and I highly recc to others if you’re troubleshooting dosing and timing. 🥰
2026-07-04 18:00:31
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Love_LGA 🇨🇦 :
I failed clonidine bad. Felt like my body was constantly trying to fight the effects. Hoping propranolol will be easier. 🤞🏻
2026-07-04 18:42:25
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Melissa :
Maybe check into the extended release?
2026-07-05 06:21:58
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SirenSG :
that's how it was when I first started taking it. but I stopped taking it a while back. i found my doctor didn't want to put me on the dosage I needed for it to actually work. so I stopped cold turkey that was bad lol but I've been great without it.
2026-07-04 01:32:34
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Trututu :
What was your average blood pressure lying/standing before you started taking Guan?
2026-07-04 09:28:58
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Durrantula Wood & Laser AuDHD :
I miss my Guanfacine 😭
2026-07-06 16:19:58
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amber wing :
Struggling with this since long covid settled in with me 5 years ago. Who diagnosed and is treating this? I'm having a hard time with any dr taking it seriously 😭
2026-08-28 20:52:07
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Inquilab Zindabad :
You'll eventually get to a steady state. Extended release will avoid the sedating peak and you can take it just once daily. .25 mg IR twice a daily is roughly equivalent to 1 mg ER once a day. "The ER formulation has reduced Cmax, delayed Tmax, and lower bioavailability compared to the same dose of IR guanfacine. Peak concentration of ER guanfacine is reached within 5 hours following dosing, whereas peak concentration of the IR formulation is reached within 1–4 hours following dosing ."
2026-07-03 23:08:33
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🫶🥺 :
My fav thing about Guanfacine is that it helps with mindfulness - it’s like it allows me to stop and think and remember what I’ve already done! The sedation stops being an issue in my experience but you have to time your evenings carefully - if it peaks as you’re trying to sleep, your natural BP drops can clash with the Guanfacine drops 🥲
2026-07-05 15:44:51
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🫧Atomic Blond-Susan🫧 :
I had this type of pots secondary to EDS for 20+ years. Just a few months ago even after cutting my propranolol significantly due to very low HRs, they had to change my meds. My Dr gave me Diltizem 30 mg up to 4 times daily. I’m struggling because of the adrenaline. I’m shaking from the inside out multiple times a day. Scared they won’t find what works for me the way propranolol did 😭😩
2026-07-05 20:33:04
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