More people need to understand this. Just because i‘m not talking about how much pain and discomfort i‘m in 24/7 doesn‘t mean I feel fine. I‘ve just gotten used to it and learnt how to live my life to the best of my ability, despite the pain and discomfort
2026-07-04 12:05:36
221
Kay Roberts :
People tell me all the time is if your in so much pain why not take pain meds. I am tired of saying they don’t work.
2026-07-05 15:58:55
36
Ems art :
10 years in, I tried to explain to my mum that every single moment is ruined by this, its like a heavy blanket. she was arguing surely sometimes, i was like no... every.... single.... moment of the last decade I have felt off, sick, dizzy, terrible
2026-07-05 21:13:04
2
aylarosalie :
I got Covid and never felt good again. I miss my old baseline, I did not appreciate how much I could do when I was healthy
2026-07-05 22:10:48
4
Martaaa✨ :
I swear people always ask me that and I’m like “well girl, what else I am gonna do? I’ve got stuff to do”
2026-07-04 20:21:30
84
y28384747484 :
how do you get ppl to stop telling you to go to more doctors, etc. bc they think everyone gets better?
2026-07-05 07:09:35
8
💜 :
And then when I have 1 good day in a month, I feel like I’m lying about my pain
2026-07-05 04:00:47
18
RetroPillow :
I checked to see the stages of sleep deprivation and realized that my normal is the equivalent of someone who hadn't had sleep in 36h-48h. On a good day I feel like 24h. People don't understand
2026-07-05 21:11:19
2
Megan NoTwizzlers :
My coworker telling me yo wfh. Girl I would never go to work if I stayed home each day I had pain. Also being at work can be a distraction sometimes. Also if I am not the one in the office, she won't do everything. I have to do her mental load and my job too
2026-07-05 16:17:33
1
Nour :
I don't even remember what 'healthy normal' feels anymore..💀
2026-07-05 19:03:44
3
Cloudburzt :
"All of these things" is 2-4 functional hours on good days, being able to power through pain. And often less.
2026-07-04 19:09:37
15
Saides R :
I’ve been a 1.5 week long endometriosis flare up. I told my coworker they asked how tf I was up at work and I said “cuz my longest has been 2 weeks so I’ll worry then” I move in constant discomfort
2026-07-05 15:32:41
2
Gah-Bee :
and then on the days where I tell you I feel like absolute shit, please trust that it's worse than your normal sick day. 😩
2026-07-05 01:19:39
16
Cameron :
“well then how do you-?” “the alternative is to die”
2026-07-05 15:05:51
1
disser (fliff always a victim) :
I get low-grade fevers DAILY. I had no idea because I was born like this, it's my baseline 🫠 Yet doctors lecture me that I must not "actually" be sick since I'm not "acting like it" for them.
2026-07-04 17:49:18
22
ityidiyco :
They don’t get it. I can’t tell you how many times I’ve said how much pain I was in with company, and literally get the shocked face “you are?!?”
2026-07-05 02:14:54
3
Ash📚🏳️🌈 :
A couple of months ago I had like a 30 minute window where I wasn't in pain and I cried both from happiness (no/low pain!), sadness (because it was a reminder of how much pain I have in my daily life) and fear (because not being in pain felt unfamiliar)
2026-07-05 21:42:14
0
Emily :
This is what people in my life don’t understand. There sick and tired is my normal, so when they say to me “it can’t be that bad” or “hope you get better soon” is so annoying and when I do explain it to the they think I’m exaggerating
2026-07-05 20:31:36
0
Paula Wasnetsky :
chronically ill girlie here
2026-07-04 12:09:36
7
toasted_bubbles :
That’s our daily.
2026-07-04 23:42:31
1
smiritti🇸🇪🇫🇮🐱 :
Right! I always hear that I look healthy and happy because I don't always complain but like, let's be SO for real I'd be even more ostracized if I did that. It's not well recieved.
2026-07-04 16:28:05
1
@10 :
This.
2026-07-05 18:02:38
0
Laura Shay :
Exactly! This ddrrnrrtrrnrmnjmmm
2026-07-05 14:34:38
0
micjenny :
Yup. chronic migraines for 8 year straight. everyday my head hurts. I can function at pain level 7 and 8. as soon as it gets to 9 and 10, im not doing so good. it gets tiring telling people im hurting everyday. so I lie and mask it. also tired of people telling me try this, try that. let me pull out my binder of stuff I have done. still need to pay the bills and do something in life besides hide in the dark.
2026-07-05 14:58:35
2
bibsblocksberg :
Yeah and chronic pain isn't like acute pain. They're different.
2026-07-04 18:45:22
8
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