Mackenzie’s EB Journey 🦋
Region: US
Saturday 04 July 2026 17:38:23 GMT
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Emma Mae🇨🇦 :
There is an amazing model and activist with EB named Lucy Beall Lott, she has two masters degrees and is getting a doctorate, she has modelled for vogue and walked paris fashion week, and has had many other accolades.
2026-07-06 01:34:18
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🎠⋆ 𐙚 ̊. :
Poor little baby, may god protect her and keep her safe, you’re amazing parents.
2026-07-05 01:18:01
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Noora :
When someone asks me why I don't believe in god, this is my why. You are an amazing mother ❤️
2026-07-05 16:05:12
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brooke :
I know in this generation so many people will just you for letting her have screen time, but you are doing amazing, I’m a teen with health issues and I use screens to distract myself from pain as well
2026-07-05 00:42:11
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⦻𖤐Linxi𖤐⦻ :
poor thing, may Lord Apollo bless her with heath and joy
2026-07-05 06:15:56
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Charlize🤍 :
Is there any cure or chance that it will go away?
2026-07-05 15:56:08
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🌈Kind NOT Nice💙🖕🧊 :
this answers why I don't believe in God and why I never wanted children
2026-07-23 11:41:00
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Millie :
I have severe eczema, and have found some brands that make clothes without tags, or seams, and they are 100% cotton, which makes them super soft. That may help her for lowering friction? I'm sure you all have looked into lots of things, and have probably already tried this, but j. the off chance you haven't, it might be worth looking into!
2026-07-06 07:50:56
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⋆ ✩angel✩ ⋆ :
I take care of someone with this same condition. shes 72 and one of the happiest and kindest people i’ve met, i wish the same for your lovely daughter
2026-07-05 03:42:40
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☻MASA☻ :
I’m not trying to be rude, but what happened to her? 🥺
2026-08-19 21:22:19
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Paige🇨🇦 :
You all are doing so good!
2026-07-05 04:25:17
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Emma 🐾🦋 :
poor girl, i hope the best for her😭
2026-07-08 20:14:42
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mel :
what a strong family and little one!🩵
2026-07-04 19:15:20
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🅇ander⨷ :
Cocomelon is harmful for your child's development and is overwhelming sensory wise and doesn't effectively teach them anything. I'd suggest researching if you're interested for more details but please don't show her this content, it's not the worst thing in the world but it's not good.
2026-08-02 23:59:02
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AbbyWest :
Poor wee chicken , it’s not fair what some have to go through . ❤️
2026-08-02 21:00:40
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chlobomb :
everyone just stop talking about religion. if you want to leave a nice comment there’s zero need to ‘let god pretect her’ just say you hope she gets better, you hope everyone’s doing okay or leave support to her parents for caring for her so kindly, or the doctors looking after her.
2026-08-01 00:21:27
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ABananaDealer :
as someone with EB, my mom wss not patient or gentle , youre doing such an amazing job
2026-07-27 02:48:54
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Maria Pavlou :
I am sorry to ask but what happened
2026-07-05 20:06:46
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mommabearirvin :
You’re doing so wonderful. Excellent job parents!
2026-07-06 21:47:31
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lu :
she's like a butterfly. beautiful but delicate. you're doing amazing with her taking care of her so well. you both deserve the world and I hope over time this condition becomes less extreme or they at least find better ways to help you manage it
2026-07-05 03:10:56
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♠♣♥♦vee :
may she be healed in Jesus name.
2026-07-05 07:09:47
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Aaaaaah :
God bless
2026-07-07 01:45:43
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Rita :
the poor baby shes so young may God help her recover faster you are very good parents (yes I did cry)
2026-07-17 00:36:16
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⁺‧₊˚ ཐི⋆³𝑨𝒍𝒊𝒄𝒆¹⁶⋆ཋྀ ˚₊‧⁺ :
Aww you are such good parents 🥺✨
2026-07-05 12:32:12
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