@adytum_official: If you’re bendy and anxious, those two things might be way more connected than anyone ever told you. People with hypermobile joints are a lot more likely to deal with anxiety and panic. And scientists are starting to figure out why. It’s physical. That same loose connective tissue that makes your joints so flexible is also wrapped around your blood vessels and your nerves. So your blood vessels struggle to push blood back up, your heart speeds up to keep up, and you feel dizzy and wired for no reason you can point to. Your nerves carry all of that up to your brain louder and messier too. And brain scans show the threat center in hypermobile people is actually bigger and more reactive. So it takes all that noise coming from your body and calls it fear. Basically, your panic might not be starting in your head. It might be starting in your body. I’m not a doctor, and this is still a young idea built on small studies. Therapy still helps a lot of people. But if “just calm down” never worked for you, that was never your fault. You can’t think your way out of a body. Sources: Eccles JA, et al. “Brain structure and joint hypermobility: relevance to the expression of psychiatric symptoms.” Br J Psychiatry. 2012. PMID 22539777. Eccles JA, Critchley HD, et al. “Neural processes linking joint hypermobility and anxiety.” Br J Psychiatry. 2025. PMID 39895195. Csecs JL, et al. “Variant connective tissue (joint hypermobility) and dysautonomia… multimorbidity at the intersection between physical and psychological health.” Am J Med Genet C. 2021. DOI 10.1002/ajmg.c.31957. Bulbena A, et al. “Association between joint hypermobility syndrome and panic disorder.” PMID 9812121. #heds #hypermobileehlersdanlossyndrome #ehlersdanlos #chronicillness #research

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blackwell1467
blackwell1467 :
So my chronically high cortisol needs to be medically controlled but no one will believe me. Got it.
2026-07-05 14:06:42
845
copper.alchemy
CopperAlchemy :
hEDS, chiari malformation, AuDHD, cPTSD,CCI, Dysautonomia- my poor brain is never calm 😳
2026-07-06 23:11:08
9
maggievass
MaggieVass :
You're moving so much it makes me anxious
2026-08-01 00:43:12
1
tlworld_80
tika :
do most people see there pulse in there belly when lying down? ive been checked for aneurysm so I can say it isnt that
2026-07-05 16:32:15
243
renee3483
Renee | Permanently Exhausted :
I have hEDS. I can hear my spine move. My heart, I control my breathing in manual mode too often, like I have a very low respiratory rate. But the ADHD causes me to ignore the input - because it’s bothersome and often dismissed by others. I’m an unreliable narrator in my own body, so the panic comes, the logic does not follow.
2026-07-06 04:28:27
76
heatherpinkneyking
Pink 💖 :
This makes so much sense! I’m so excited that we are STARTING to study hEDS’ effects more.
2026-07-05 04:50:43
210
litesweet82
Lite+Sweet :
And we make more adrenaline. Beta blockers might help more than SSRIs
2026-07-06 22:37:21
15
denylsbloodrose
Denyl the Raven :
Yep mine is confirmed 3x normal size but I also have CPTSD
2026-07-05 07:16:50
135
myotherworld888
myotherworld888 :
How can someone actually get scanned? How do we sign up?
2026-07-05 02:23:25
60
re_jena
🆘🇺🇲 jenx :
IM SO TIRED OF HEARING AND FEELING BODILY FUNCTIONS 🫩
2026-07-05 14:59:15
19
nerdymama13
nerdymama :
I wonder if this also fits for hypermobility syndrome. I missed a hEDS diagnosis by 1 point but still deal with lots of hypermobility issues. this would still make sense to apply to people like me
2026-07-05 14:49:45
11
ameliajo3201
AJ :
for those of us with ptsd as well, that can amplify our pain signals (not blaming one for the other, they affect each other). I just started Stellate Ganglion Blocks to try to work on this
2026-07-06 16:51:25
15
smeggers922
smeggers922 :
This made me cry. I’ve been told I’m too sensitive my entire life.
2026-07-05 20:27:50
16
midnights_sunshine
Midnights N Sunshine :
I have fibromyalgia and this sounds very familiar. Wish they’d do similar study with fibromyalgia
2026-07-05 14:48:00
11
abruce22
Ann Bruce :
this makes so much sense, add in perimenopause and iron deficiency and it's a nightmare
2026-07-05 15:20:49
9
aliciamiller6646
Alicia Gibson Miller :
I feel that adrenaline rush of anxiety pumping through my body all the time. It's like my body wants to live in constant fight or flight mode. I have a faster heartbeat too. All this happens w/o anything bad or triggering happening. It can make a person feel nuts.
2026-07-07 20:01:37
5
maui19831983
🪷🌸Mãŭï🌸🪷 :
so what would this maybe mean for pain signals?
2026-07-05 05:08:15
5
michellerose2409
Michelle Rose :
Yes!!! I can hear my body’s processes and feel everything soooo much. People don’t get why I don’t liked to be touched most times
2026-07-06 15:16:17
8
earthlyessentials1111
user8347576365348 :
My enlarged amygdala had me stuck in fight/flight mode my entire life until my adrenal glands shut down and now I’m unable to physically deal with stress w/o steroids for the rest of my life🙃
2026-07-06 18:02:20
6
panopticon.society
panopticon.society :
The way I yelled “the amygdala” as soon as you said “structure” lol
2026-07-06 05:03:11
5
swanson_05
Cheyanne :
I’ve been looking for the words for this. I’ve always sworn I could feel stuff ( emotions, pain etc) in my body before my brain clocked it. I was diagnosed two weeks ago with hEDS and fibromyalgia. Thank you for bringing light to the subject!
2026-07-05 13:46:01
5
ringoffaya
Ring of Faya 🇵🇸 🇸🇾 🇨🇦 :
my cortisol is 4x higher than normal. doc gave me a pill, did another test, came back normal. obviously it meant I'm normal, and not that the medication helped me and could improve my quality of life.
2026-07-29 18:14:39
2
manual.para.el.caos
manual.para.el.caos :
Duloxetine 👀 ♥️
2026-07-06 06:57:05
1
corinnekell
🥐orinne :
I have hypermobility but not eds is it still related
2026-07-07 06:53:25
3
bombsh_elle
V.Valentine 🇦🇺 :
… because it has a high comorbidity with autism….
2026-07-24 14:37:21
2
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