Adytum
Region: US
Tuesday 07 July 2026 01:47:50 GMT
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TurnANewLeaf :
The quality of life for ME/CFS patients is as poor or worse than severe heart failure, COPD, and multiple cancers, and chronic kidney disease. It is a SERIOUS condition that is so overlooked and underfunded it is really horrifying!
2026-07-07 02:24:30
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lynxgaela :
makes me so angry!!!>:(
2026-07-07 02:18:15
7
luck :
I have ME/CFS and can't work, I've been trying to get on disability since October of 2025 🥲 I'm lucky I have a support system that can care for me while I'm unable to care for myself, my heart breaks for the people who aren't as lucky as I am
2026-07-07 17:11:27
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Babuska :
and we get denied disability
2026-07-29 04:57:27
1
Caelyn :
just a reminder that the condition is not "chronic fatigue" like the title says, because chronic fatigue is a symptom of thousands of conditions. Please just refer to it as myalgic encephalomyelitis or ME/CFS (thank you for doing that in the video, but the title is still incorrect and misleads people). The distinction is important if you want to discuss our condition, especially because those of us who have this condition have been asking people to stop calling it chronic fatigue for a LONG time.
2026-07-10 23:36:39
5
Cynthia :
that's the amount of people that have a diagnosis... it's so hard to get one and so many of us are too sick to keep trying to get one
2026-07-07 09:50:26
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ia3 🍉 :
🥲❤️🩹🫶🏻 appreciate all your videos and advocacy and thanks for citing your information
2026-07-07 01:52:38
4
Alex :
Thanks for talking about this 💙
2026-07-08 21:52:23
1
Ally :
Buuuutttttttttttttttttttt whyyyyyyyyyyyyyyyyyyyyyy???!!!!!!!!????????????
2026-07-07 16:03:29
0
Stella Heliconia 🇵🇸♿️🌈🍁 :
I have both and I would say MS funding is very limited. It’s still mainly geared toward helping people with RRMS only. However, everyone has heard of MS pretty much. A certain privilege comes with that. It’s harder having something most clinicians are unfamiliar with, I find
2026-07-08 12:09:57
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Katie M :
Thank you for talking about this 💙
2026-07-07 18:31:55
2
raastiis :
ty
2026-07-09 00:54:10
0
D Force :
“Chronic fatigue” this is so unbelievably harmful to call it this when you’re talking about M.E.
2026-07-07 13:58:15
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girtrude :
multiple comments telling this creator not to call it “chronic fatigue syndrome” but the creator won’t like the comments or respond. take accountability. it’s called myalgic encephalomyelitis. that’s what the community wants it called. this creator is being negligent and ableist
2026-07-25 17:36:12
1
💓🌸🌷 :
we don't call ME chronic fatigue syndrome anymore
2026-07-12 16:07:11
3
DemoCrazy :
The numbers are terrifying. In Germany our government has a new package of 500 million Euro for research. That sounds much. BUT that's for 10 years in total. Means 50 million per year. The cost of ME/CFS are about 60 billion per year! In comparison the funding is a joke.
2026-07-09 01:08:29
1
Ewrona15 :
put that against impotence and bent carrots.
2026-07-17 05:17:51
0
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