@itvnews: A grandfather from Barnsley is speaking out about his experience living with Stiff Person Syndrome in the hope to raise awareness and advocate for better access to vital medications which can ease symptoms. Minutes after Ian Rawlins spoke to ITV he went into a full body spasm. Both Ian and his wife asked us to share the footage to help people understand the rare condition. Responding to a petition set up by Ian’s wife calling for greater access to clinically approved medications not available in the UK, the Department for Health and Social Care said they understand the limited options those living with rare diseases face and they are working to improve care. #Stiffpersonsyndrome #célinedion #itvnews