eburyofficialbackup
Region: GB
Wednesday 08 July 2026 20:27:03 GMT
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Squirrel :
Omg I thank my lucky stars I was diagnosed very quickly in the 1990s within weeks had a hysterectomy
2026-07-11 17:41:30
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sapphire7342 :
Apparently I had endometriosis but I didn’t know until I read it on my medical records
2026-07-12 19:56:09
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deesworld1996 :
Yup! I have been left since giving birth in 2021 I’m on morphine and I’ve been waiting since end of 2021 I’ve followed up I’ve even been in hospital yet still no appointments
2026-07-11 16:52:51
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Phil of the Future :
There’s more research on male hair loss than endometriosis and PCOS iirc
2026-07-08 20:57:02
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Clare tnn :
Same omg it really hard to deal with it
2026-07-08 20:31:03
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ᴀᴠꜰᴀxɪꜱ ᖭི༏ᖫྀ 🧟♀️🌀 :
I’ve been misdiagnosed 3 times! I’ve now got an amazing nurse and she most definitely thinks I have it
2026-07-10 19:25:21
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NYX🪬🌹 :
I only found out I had endometriosis last year, I am 51 😳 it’s disgraceful
2026-07-09 11:54:37
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HazbinGurly7 :
I've been waiting a year and a half for my diagnosis
2026-07-10 07:01:37
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V :
I work in nhs as a nurse and I was diagnosed with Endometerosis in 2012. I’ve had seven operations. Been off sick last 3 months and I’m not 100 per cent. But can’t stay off for ever.
2026-07-10 12:27:48
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✰✄Core✰♡ :
this is getting a bit fat
2026-07-08 20:31:28
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Althea :
I was told my issues were normal. only to have endo lesions found when they did open surgery for cancer removal at 30. haven't had any support or even a single discussion about it since.
2026-07-10 08:43:17
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sally 🎶 :
You’re the best honestly I’ve been following you for ages we need more people like you on hear
2026-07-10 11:46:27
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. :
The amount of crash outs I’ve had on doctors is crazy there’s literally more research into male balding then women’s health it’s insane and I’ve had many doctors admit to me it’s true and there’s only 1% research into women’s health like what
2026-07-10 06:14:56
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Sophie Jones :
I have been left on pain relief and struggle so much mine effects my mobility
2026-07-09 19:46:38
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Broken Biscuits 🎶🎼🎵🎤 :
Thanks for posting this. Ive got this and ando. It took from 14 to 45 to get diagnosed. Mine is too complex to operate on and they trialed me on that new medication but it made me to unwell. Luckily body identical HRT is helping a bit. You’re spot on what you say here. We just get left to self manage. I was never taught about this in sex education at school. I thought it was normal to be like this for years. I hope they educate more on periods in school now but I won’t hold my breath.
2026-07-10 07:24:16
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Emma Parkin :
i don't have endometriosis but when I was diagnosed with fibromyalgia back in 2010 and just left to it 😒 they need to do more research in alot of things but endometriosis i absolutely agree should have more research done than leaving women over 10years to be diagnosed and then left to it
2026-07-09 12:30:34
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Moon_Maiden :
I’d like to try the test that uses electrodes, the saliva one is apparently useless if you’ve had a hysterectomy. The BSGE centres are supposed to do follow ups, around, 6, 12 and 24 months after surgery. There needs to be minimum training standards and more specialist surgeons.
2026-07-11 02:00:26
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⚯ ͛❾¾⚡︎𓅓𝔍𝔢𝔯𝔞𝔠𝔶𝔫𝔢🃖🃁 :
It’s sick how misogynistic and un-equal the world is. It’s depressing and furiating
2026-07-08 20:30:49
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clarelouisepric95. :
Thanks for speaking out I had to fight and fight for my diagnosis
2026-07-11 21:34:59
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ShaneMills :
This might sound abit odd- considering you mentioned endometriosis and diabetes but? we also have a cure for cancer now yet no doctors look into huntington’s disease and there still isn’t a cure for that. just one of the many diseases we have yet to have cures for . 😥
2026-07-09 03:30:34
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Leanne ADHD 🩷🏴 :
Am sure I have to I’ve been bleeding 8 days on my way home today I’ve had to pull over because I felt so sick and the pain actually made me cry.. I’ve had fertility issues and had horrible periods since my early 20s but as am getting older they are horrendous especially the last 8 years saw 1 female doctor she told me it’s “ normal” I saw a male doctor who said oh it’s probably Endometriosis but kinda fobbed me off an nothing happened after it
2026-07-08 20:33:14
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Katie🎸🖤🍒 :
My experience with Endometriosis/Adenomyosis has been the absolute worst. I just hate how women are treated when it comes to this stuff 😔
2026-07-08 21:05:07
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Jazzzzzzz:D :
This is not ok at all
2026-07-08 20:34:02
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𝐍𝐚𝐭𝐚𝐥𝐢𝐚 ꨄ :
i got a laparoscopy done in november which confirmed i have endometriosis and since then ive had 1 app with gynaecology and i told him that yes he had removed it however im still in so much pain and all i got told was “well it can’t grow back this quick” i then got a letter that was a recap of my appointment and in the letter he stated that “everything was fine and i wasn’t in pain anymore and i had no bleeding” however i bled for 5 months straight
2026-07-08 22:30:08
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