@saving_liv: Sanfilippo Syndrome, MPS Type 3, is often referred to as childhood Alzheimer’s. Liv has fully lost her speech, and will lose her ability to walk and feed herself in the coming years. Her story deserves to be told, and her light will shine bright 💛 #savingliv #sanfilippo #fyp

Saving Liv
Saving Liv
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Region: US
Thursday 09 July 2026 20:36:57 GMT
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ddebiase1
DawnD :
I adore this little angel…..
2026-07-13 17:30:28
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itsnotezbenme
itsnotezbeNme :
I also include Liv in my prayers everyday! May I ask you why you say even though it’s too late to save my daughter? I’m confused, what if something comes up in the next 5 years?
2026-07-09 21:50:10
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user13540565
Courtenay Nagy :
she's beautiful🥰
2026-07-14 02:28:55
0
mamasandmaverick
Maverick and Mommas :
How is liv doing??
2026-07-10 01:10:48
6
sherry.warren.she
Sherry Warren ( SHER) 🇨🇦 :
Precious little girl 💘💘💘
2026-07-14 02:57:01
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peanutbutterj101
peanutbutter101 :
I’m so glad you are her mum. I can hear in your voice how loved and comforted she is 🫂
2026-07-12 02:06:57
12
kristymetcalfe78
Kristy Metcalfe78 🇨🇦 :
shes already made a tremendous impact! so many people are aware of this condition because of her. I pray she continues to light up our lives every day! ❤️
2026-07-11 20:29:32
1
hopelivs
hopelivs :
Thank you for sharing that beautiful child with the world
2026-07-09 22:42:41
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oh_mylanta_lady
oh_mylanta_lady :
She has definitely made an impact on me💜
2026-07-09 21:54:22
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remyandprinceloverrrr
remyandprinceloverrrr :
Please God somehow let this child live a life pass her teens and defy the odds she seems so full of joy and love
2026-07-12 02:41:44
1
tiddlywink78
Tiddlywink78 :
This girl has made an impact on me! She is so special. Thank you for sharing her.
2026-07-09 23:12:12
5
defend6usa
Defend6 :
I love that you share your precious Liv with the world! 🥰💞 She has made such an impact on us watching thru the screen…and I know you sharing this beautiful angel with the world has spread light in others being diagnosed early and yes she and you and your family have made a huge impact on the whole world 💕
2026-07-10 04:31:29
1
tinakachmar
tinakachmar :
Liv is lucky to have you as her parents. I really hope an option becomes available soon 🫶🏼
2026-07-11 00:08:02
1
noemicruz895
Noemi Cruz89 :
I embrace you with my prayers ❣️
2026-07-09 23:35:00
2
missthemhills
mountain girl × :
hello Liv. it's good to see your precious little self today.💗💗💗
2026-07-09 21:34:52
3
momof4locos
Damn, Gina! :
Thank you for sharing her life with us, when you would be fully within your rights to keep that time private to your family. You are raising awareness for other families who may be able to catch it earlier. Every day counts 🥰 for a good life and for research. You’re giving her a beautiful life, even though it is far shorter than is fair.
2026-07-09 22:39:00
2
nanettewelter
Nanette Welter :
She’s a beautiful angel! You’re such a wonderful mom, and such an inspiration! Thank you for sharing that beautiful baby girl with all of us! 🩷
2026-07-09 23:39:40
1
eabroad
E✨ :
You are such an amazing mama! I love your videos. Lots of love to Liv and the family 🤍
2026-07-10 04:48:02
2
brittanyhyatt3
Brittany Hyatt :
Her precious little face always makes me smile! 💕
2026-07-09 21:52:40
5
brigittemotes543
brigittemotes543 :
God bless your beautiful family, my heart breaks for your beautiful little girl🙏
2026-07-09 21:11:43
1
lyssjmartin
Alyssa :
You and Liv have brought so much awareness and education about sanfillipo. Thanks for sharing your beautiful daughter with us.
2026-07-10 02:07:38
1
07mindy31
07mindy31 :
You’re the epitome of strength and grace.
2026-07-09 23:49:37
1
theluckybutterfly17
Cindy :
❤️❤️❤️I pray everyday for Liv, you & your family! 🙏🙏🙏 hang in there, your TikTok family loves following your journey! Stay blessed…🌸
2026-07-09 20:53:42
1
jenna12345678
Jenna :
What a beautiful, sweet soul.
2026-07-12 15:57:54
0
footcheese2k
footcheese :
Wow I hope she enjoys what time she has left and I hope you find peace and time to care for yourself too
2026-07-13 03:18:33
0
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