mamakatieinc
Region: US
Thursday 09 July 2026 21:53:41 GMT
3035
248
37
13
Music
Download
Comments
Leah :
Propranolol really helped my pots symptoms so much
2026-08-26 01:50:13
1
MariahLocklear :
I take Corlanor for POTS! Life savor
2026-07-10 03:58:35
3
Mlv :
Please check your blood sugar! Mine was form having low blood sugar drops and not even realizing
2026-07-23 17:24:07
2
Valerie Perondi :
Yes, girl, the heat the heat is horrible and never used to bother me before I’ve been out in the high desert of California Southern California and lately it’s been in the hundred 107 and it’s horrible like I don’t wanna go anywhere near the heat. I don’t wanna go outside and play with my grandbabies. I’m afraid I’m gonna faint afraid I’m afraid I’m gonna fall and hit my head which is all bad it’s just it’s totally frustrating and I got doctors. Tell me oh don’t worry. It’s just an arthritis in your neck. Oh don’t worry it’s just anxiety and then they prescribe me 12 different medications for ailments that I don’t even have like gout I don’t even have gout. Why would they prescribe me medication for gout?
2026-07-27 13:33:16
1
AmberN :
I haven't found a good way to manage my systems/flare ups, especially when it's hot. I'm on beta blockers (twice daily) and prescription fluids daily and it seems to only help minimally. I haven't driven in about 2 years because the symptom burden is so high I don't have "good days" anymore
2026-07-26 02:26:25
7
ChickenTenderz :
Me right now with frequent adrenaline dumps. Not sure what to do anymore it’s never been this bad despite taking all the precautions and taking care of myself. Gonna have to see my primary care doctor …
2026-07-28 02:15:47
3
🌞 Missy_Sunshine 🌞 :
Someone told me frozen grapes help. I just got some and froze them but haven’t gotten to try it yet.
2026-07-24 15:22:07
1
Katie 😊 :
Hey get ur ferratin checked I had heat intolerance untill I corrected my ferratin level anything below a 30 can cause this
2026-08-09 14:58:41
1
Bre. :
Hi there as someone who struggles horrible with medical anxiety. I have Eds and pots. I take propanalol I’m on the lowest dose 3 times a day and it has helped a ton. I started super low and slow and we have worked up to what my body needs. I live in Arizona and it’s so hot I also suffer from heat intolerance. But please get on a beta blocker it has help bring my blood pressure up and stable.
2026-07-25 22:23:20
3
Chaura| 📚😷🏋️💪 :
one thing that I'm find. alot of pots patients doing understand why the increase in electrolytes and salt needs to be. you said you drink a liquid IV everyday? and put salt on your food? that's it? I drink only electrolytes. 120 oz everyday. no plain water. plus an IV of hydration. do you also have heds by chance?
2026-07-24 21:47:31
0
Sami Renee :
I’m right there with you. I had to move back to my home state with family nearby because I’m a single mom with a toddler and my pots has been getting worse and I don’t know what would happen with my child if I had a really bad episode. It’s so scary. I’m so sorry you’re dealing with this. Please invest in a watch or something that alerts 911 when a fall happens. Also try to make sure your kiddo knows what to do if another really bad episode happens 🫶🏼
2026-07-09 22:48:05
2
𝓔𝓶 𝓔𝓵𝓲𝔃𝓪𝓫𝓮𝓽𝓪 🥀 :
Xolair injections helped this so much for me
2026-07-24 16:49:20
1
Nairobi Rojas Awais :
🫶🏻🫶🏻🫶🏻sending hugs
2026-07-11 01:46:52
4
Mikayla :
Sounds like you have a really safe person living with you and that makes me happy for you. I’m so sorry for what you’re going through. Our healthcare system is fucked.
2026-07-09 22:27:25
3
francescasivitz :
Neurologist over cardiologist for me!💕
2026-07-27 04:32:35
2
💋Michelle :
I just want to let you know you’re not alone. Big hugs to you!!! 🫶
2026-07-10 20:10:13
1
rg :
my dr said in the summer increase extra water and electrolytes daily, she also said try not to be out in the summer and also turn your car on before getting in it and put ac on, also compression socks/stocking. also you may need a medication adjustment. corlanor helped me so much. maybe you can get a mini fridge in your room so you always have what you need. for your kiddo you can try to do things later in day when its not as hot or early morning if you can tolerate it. I'm sorry you are having such a hard time I get it
2026-07-11 00:16:38
1
Valerie Perondi :
I hear your mama. I just got pre-diagnosed with pots and dysautonomia and it sucks so bad because I’m a barber and I work six days a week 12 hour days on my feet constantly hustle bustle at the shop and for the last three weeks I’ve only made it one day a week and it’s just been so horrible. My question is are we even eligible for fricking disability because this is debilitating to say the least this is horrible my flareup this week has lasted all week. I’ve been in bed all week with barely any enough energy to go to the bathroom. I haven’t showered. I haven’t done laundry. I haven’t changed my sheets. I can’t play with my grandbabies. I can’t do the dishes. It’s been awful absolutely awful. This is the worst syndrome ever I mean they’re all bad but this one for me sucks so I feel your pain.
2026-07-27 13:29:51
1
Antoinette Bartsch-Newhouse :
Sending you so much love and ice 🧊 ❤️I’m 48 and going through this as well. So scary.
2026-07-10 02:08:01
3
Raiin&Ruin📚Booktok :
At the dollar tree they have these fever stickers that are basically mini ice pack things in the baby section, get them and the towel that get cold when wet. That’s been my go to this summer cuz this summer has been intense.
2026-07-09 22:53:31
1
K.L :
oh hun.i understand you. im 62 ..single...and symptoms spiraling. we need a community where everyone lives!❤️
2026-07-29 06:07:00
0
Marykate Boring :
Please message me, I have a ton of stuff that’s helped me that I’d be happy to share. I know it’s though ❤️I’m sorry
2026-07-11 23:33:41
1
Darla :
I have POTS too. If you’re already diagnosed a primary care doctor should be able to prescribe you beta blockers so you can skip the specialist for now. Like you said drink a lot of water and salt alllll day not just when you feel the episodes coming on. I just double my daily salt intake because of the heat and it’s really helping. Sending you 🫶🫶 I’ve heard compression garments are great but I can’t tolerate them
2026-07-13 23:22:43
2
Caitlin Montanez 🦓 :
I started passing out from the heat since I was 9 and not one dr my entire life has said oh you have pots and I started seeing a cardiologist when I was 9 bc I was fainting from the heat. I have mentioned that to multiple cardiologist and they said of your heart conditions don't cause you to faint from the heat. I was diagnosed with hEDS at 20 and I've never really been seen by a rheumatologist bc all of them I went to said the same thing, I don't know how to help you and they pushed me off to the next and after the 7th I gave up that was in 2015. I now know that not only do I have hEDS, but I have dysautonomia, pots, and many more. My pots episodes have been way more often and they're getting worse. I drove myself to the er from work and I passed out at the registration desk. That was the worst episode that I've ever had, I passed out like 4 or 5 times it was so scary. I live alone but I have kids kids 50 50 with my ex
2026-07-09 22:15:30
1
Elizabeth :
I am SO sorry. This condition is hellish. You are not a bad mom, pots is such a heavy burden. A good neurologist has been #1 for me (or a cardiologist who is INFORMED on pots, preferably a woman), abdominal compression has been a lifesaver, and check out @POTS Doctor videos. Don’t lose hope ❤️
2026-07-27 17:56:37
5
To see more videos from user @mamakatieinc, please go to the Tikwm
homepage.
