@shellyjohnsonn: So the next step is July 21 I have a CT venogram and that will be a road map for another venogram that I need to be put in twilight for at an outpatient procedure clinic to find the source of where the blood is getting backed up. Then surgery to fix it. If you have any experience with pelvic congestion syndrome I’d love to hear your story, please reach out! #pelviccongestion #pelviccongestionsyndrom #pelvicpain #miscarriage

Shellyjohnson
Shellyjohnson
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Friday 10 July 2026 03:36:06 GMT
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kay.r4546
Kaylaroo🙃🐦‍🔥 :
I have PCS but, they think the root cause is MTS. they've done a ctv then did a venogram. I've also had a CTA that shows SMAs without NCS but no Drs in my area will acknowledge it since it's so rare. so my only offer is to place a stent for MTS in hopes it'll fix the PCS. I recommend getting the ctv, rule out other compressions before treating it.
2026-07-10 04:17:31
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handlsweetsandtreats
handlsweetsandtreats :
Had a total last year and I had pelvic inflammatory disorder, I’m so sorry you’re going through it
2026-07-10 03:51:45
1
gentlehavenco
alexis :
I had the left ovarian vein embolization and it changed my life. Truly.
2026-07-10 04:47:13
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cicibaybee
cicibaybee :
I had left & right ovarian and gonadal and surrounding vein embolization a few months ago with coils placed along all those veins. Now it seems like blood and pain has moved deeper in my thighs and knees. I still have major sciatica and pain with bowels so I’m leaning towards endometriosis possibly with overlapping symptoms. Horrible. Tired all the time, dizzy, chronic pain and suffering daily
2026-07-10 04:54:57
1
mookieeees3
🥸 :
any update?? i just diagnosed with this i’m in so much pain. I was diagnosed today in the ER😭 Is it worse during your period? is it better durning ovulation?
2026-07-12 00:34:19
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