Healing Alice 🌿 UGC
Region: GB
Friday 10 July 2026 12:08:38 GMT
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bambino123yyy :
Thanks so much for sharing your journey it might lead to change 🙏🙏
2026-07-10 18:33:56
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ND100AuDHD :
The NHS and the UK is so behind. Where did you go to find your answers? Spain or the US?
2026-07-10 16:35:54
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Not Applicable :
For anyone looking for an upright MRI Machine, there is one in Manchester
2026-07-10 18:12:37
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Frap🫵🏽 :
This is what I’m going through, it’s draining
2026-07-10 17:28:03
2
sophie :
what symptoms did you have from the teathered spinal cord?? I think my son could have this.
2026-07-10 18:33:25
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Onestop Maintenance services :
where did you get these tests done and what was the cost🤔. what type of specialist was it thanks 👍
2026-07-10 18:48:51
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Elizabeth :
Can you tell me where you went to please? I’m convinced this is me too. 🥰
2026-07-10 12:33:46
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maria.rizvi :
Can you tell me more please
2026-07-10 17:30:36
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Poppypuggle02 :
I totally believe you!
2026-07-10 13:16:39
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Katers :
I have POTS, undifferentiated connective tissue disease, pernicious anaemia, thyroid issues. But I think there’s more.Where did you get tests done and was it helpful? As in did you get treatment
2026-07-10 13:01:43
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Jennifer Lou :
Hey! I’m also in Manchester funnily enough, and going through something very similar. Just stumbled across you and about to go and watch ALL of your videos, ty!
2026-07-10 12:19:55
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Paula Dickinson :
Hi , this fits with some of my history and I now have a spinal injury I’m trying to prevent from causing further damage . Can I ask where you went please?
2026-07-10 14:50:24
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bambino123yyy :
Pots , mcas, ME 🫠🫠lucky us
2026-07-10 18:31:34
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Penelope Pizza Pocket :
finally started getting diagnosed at 48. Turns out it was ehlers-danlos, POTS, raynauds, ME/CFS mcas, DDD, adhd and a touch of the 'tism and not anxiety and hypochondria
2026-07-10 17:56:59
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nyankosensey :
i am physiotherapist. i knew all of this and u feel helpless cuz doctors dont admit problems and say pacients imagine their siptomes
2026-07-10 18:33:28
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@Angel_for_life - sarcasm :
I fully agree I have myself been unwell now for 5-6 years and so far all tests have been fine but I have a swollen distended upper abdomen when I stand which is fine again upon sitting and lying down, it causes constant pain, opacity in one lung, and a whole range of symptoms including a low grade or borderline temp 80-90% of the time and I'm having trouble getting answers to what is going on, I've asked them many times for scans etc whilst standing given it is positional distenrion and getting told no, I'm trying to fight for an MRI and not getting one, it's ridiculous gastro didn't even examine me first referral blamed my IBS refused 2nd one, then the doctor had no choice but to refer me to general surgery who found two conditions gastro should have found I'd they done they job though neither are responsible for what is currently going on, it's a joke, this has been going on for years, general surgery have now referred me back to gastro and I'm waiting to seen again by then after years of this and waiting to see the respiratory team as the breathing issues it causes got diagnosed as mild copd and my symptoms are not consistent with copd and inhalers do not work. Such a shit show I've lost my career, I've lost my quality of life all because our NHS can't do their job right even though I have signs and symptoms of something being wrong! Addiontionally, it took 6 years after an xray confirmed athritis to convince my doctor to refer me to Rhematology, even though I have ME/CFS and signs it could be rheumatoid athritis which my other had. I'm done with them as soon as I get a proper diagnosis I will be taking legal action for loss of earning, career and the emotional and psychological toll this has had on me. I think the fact I keep ending up in hospital when I don't have a history of using out of hours in my whole should alone make them take me seriously! I've even been sent directly by my GP to A&E due to the state I've been in.
2026-07-10 16:41:09
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liz :
🥺🥺🥺
2026-07-10 15:19:48
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