can you have eds ur whole life then not develop pots until ur teen years?
2026-07-28 19:08:57
232
ken 🦭🏖️ :
literally, when the hEDS diagnosis happened, i got like three more within the year. hEDS/POTS/GERD/Autism baddies unite
2026-07-28 21:00:34
14
Vespers Storm :
I'm so mad...that the supposed rare genetic condition... is literally everywhere and no doctors wanna study it ;-;
2026-07-28 16:18:54
762
wist :
усі дороги йдуть в Рим як усі мої проблеми ведуть до гіпермобільності
2026-07-23 06:20:48
5
Tobi <3 :
I’m fat, autistic and have ARFIDS it’s hard out here.
2026-09-08 21:12:57
14
L. Meddow | Author 📚📝 :
me having eds, autism, and adhd 🧍♂️
2026-07-28 15:28:18
205
retchy_ :
And don’t forget MCAS. MCAS isn’t overly likely if you just have hEDS. But if you have both hEDS and POTS, there’s about a 60% chance of having MCAS as well, which can cause allergy like reactions without necessarily having distinguishable or consistent triggers. Anxiety disorders are also about 70%, which was largely unexplained until a study found that people with hEDS had significantly larger than average amygdalas on average, which is thought to contribute.
2026-07-30 02:26:27
8
𝕫𝚘𝚎𝚢 ♡ :
i have pots and adhd, blood pools to my legs a lot, im hypermobile . . Should i look into heds
2026-08-16 16:46:12
5
A :
im starting to think the violent pain in my joints legs and hand as a kid were not growing pains… cause i’m pretty sure i stopped growing awhile ago
2026-07-11 15:50:37
120
probablynapping :
I have Chiari malformation, adhd, inappropriate sinus tachycardia, raynauds syndrome, orthostatic headaches, “fibromyalgia”, chronic migraines, GAD, PDD, PMDD, among others I can’t remember. I suspect I am AuDHD and have MCAS, POTS and hEDS because of lifelong symptoms. Writing it ALL out is disgusting and hurts my heart. Understanding it all and making sense in this body I was given has been a huge struggle but seeing other people and realizing those things I feel are real and I’m not crazy. Well, I guess technically I am. 😂
2026-07-28 20:53:38
26
Lindsey McClinn :
almost like connective tissue is EVERYWHERE in the body😂
2026-07-28 15:14:11
73
JB ✨ :
Can we also add queer to this list? I can’t stop thinking about how many folx I know with EDS that are also queer
2026-08-05 00:28:21
6
BEEF. :
i wrote a research paper on this!
2026-07-28 18:30:18
17
🦇🦇Amaya :
Hey if you have one chronic illness it’s more rare to only have one instead of multiple
2026-08-19 17:21:24
13
𝔪𝔢𝔫𝔞‧₊˚ 𝄞₊˚⊹ :
(somatic super-syndrome)
2026-07-27 19:31:13
6
Coserker :
Dude, I swear it feels like everything I experience just somehow trails back to this fuck ass syndrome and I don't know how to feel about it
2026-07-29 02:55:25
5
🍄 :
It’s also genetic and so is autism
2026-07-29 03:30:50
0
maryjane :
i always wondered if the extra elasticity in the skin that people w eds have is why so many autistic people get mistaken for being younger
2026-07-29 09:22:48
5
Tyler :
thats a crazy coincidence, ive got adhd, ive had autism mentioned many times, im tryong to figure out if my hypermobility is eds related and pots is a possibility on the backburner