chronicallynoha
Region: US
Saturday 11 July 2026 04:42:14 GMT
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Luna :
I brought a hole note book and got dismissed as fibromyalgia 💔 ik I have heds..
2026-07-11 17:54:09
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stargazergays :
Went to the only hyper mobility specialist we have in our area, brought a whole list of symptoms asking about EDS and I kid you not she responded with “ I don’t know anything about that. That is not my department.” then why call yourself a hyper mobility specialist…….?
2026-07-18 21:03:18
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warriorqueensunite :
My primary care doctor yesterday told me that she’s never heard of hEDS or HSD. 🥴
2026-07-11 11:27:11
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Papa Hope :
thank you thank you thank you thank you thank you thank you thank you thank you thank you
2026-07-11 07:59:38
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Dani Davis :
I wish 😂 I did all this my gp who sees iv been referred from rheumatology back to cardio, neurology and pyshio. My gp responsed "your quality of life doesn't effect your ability to work" when I stated I can't cook or shower without falling or fainting.... an occupational therapist I seen after him signed me out for 8 more weeks to the original 12 iv been off
2026-07-14 23:40:52
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Kendra | @ptcglass :
Thank you! This is helpful
2026-07-11 05:06:25
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neurospicy :
😁😁😁
2026-07-11 09:25:47
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