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@bzrha1: #creatorsearchinsights2025 #سديره_ارض_لامن_والمان_والحب_والسلام #الشعب_الصيني_ماله_حل😂✌️ #الحويجه_دار_العز @مادي البوعطوش/

𝑨𝑬𝑨𝑫
𝑨𝑬𝑨𝑫
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Sunday 12 July 2026 10:52:53 GMT
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dyh7b5klnx70
مادي البوعطوش/ :
داه داه 😁😁😁
2026-07-12 10:55:28
3
a_b25_
عبود الكهاوي ❤ :
اييييابه
2026-07-12 12:41:27
2
_5._.44k
ال جــِبوريةة :
صوت شجي يقطع القلب 💔السعادة لقلبك وحياتك
2026-07-12 17:15:18
2
al_tech
اناقة محلل🔬 :
المن هذا البيت؟؟؟
2026-07-12 17:07:14
1
am_1992.com
𝐴𝑏𝑛. 𝐷𝑦𝑎𝑙𝑎 :
عاش صوتك
2026-07-12 16:50:08
1
user720334286
ذكريات قدرحلت :
صح لسانك ولله
2026-07-12 15:42:48
1
userp21bo4915r
تعبني لوكت :
🥰🥰🥰
2026-07-12 22:39:30
0
user819253230268
ابو همام :
😥😥😥
2026-07-12 18:38:59
1
userkrp4hc24sp
امواج هادئه :
🌺🌺
2026-07-12 20:01:40
1
fkh_q
عسكري هيبه💔 :
🥰🥰
2026-07-12 17:46:39
1
asjlh6
AHBR :
🥰🥰🥰
2026-07-12 15:26:34
1
khaledaljubouri35
خالد الجبوري :
😱😭😢🤧
2026-07-12 11:29:15
1
j_brr1
الجـ𓄌ـبـــوريــه_Al-Jabouriya :
🥰
2026-07-12 10:55:33
1
xz2008a
علي ال عبد :
🥰🥰🥰
2026-07-12 13:44:42
1
dy8a7wwaogy1
لؤي فاضل الكهاوي :
❤️❤️❤️
2026-07-12 11:14:45
1
h.3or7
هوار رباح :
🥰🥰
2026-07-12 10:57:36
1
user4520450053304
رعد الحلبوسي :
🥰🥰🥰
2026-07-13 07:16:07
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Savannah has a super ultra-rare disease called SMC1A DEE, and she's one of only 41 documented cases worldwide. It's truly a one-in-a-million condition. SMC1A DEE causes an incredibly catastrophic form of intractable epilepsy, meaning her seizures are resistant to any kind of treatment. Due to the severity of her seizures and super refractory status epilepticus Savannah has a trach, feeding tube, a VNS (Vagus Nerve Stimulation) device, and a mediport. We've tried everything we could think of to control her seizures - more than 15 different anti-epileptic drugs, a ketogenic diet, CBD/THC treatment, VNS, IV steroids, IVIg infusions.... you name it. Gene therapy is our only chance to finally bring some relief to Savannah. We're holding onto that hope with all our strength and praying for a miracle. Despite everything she goes through, when Savannah isn't seizing, she is the sweetest and happiest girl you'll ever meet. She always has the biggest smile on her face and brings so much joy to those around her. She breathes normally, eats by mouth, and absolutely adores being around people - a true social butterfly! #servicedog #seizureresponsedog #servicedoglife #servicedogsoftiktok #dogsoftiktok #seizures #seizuresawareness #epilepsyawareness #smc1a #medicallycomplex #raredisease #genetherapy #specialneedschild #specialneed
Savannah has a super ultra-rare disease called SMC1A DEE, and she's one of only 41 documented cases worldwide. It's truly a one-in-a-million condition. SMC1A DEE causes an incredibly catastrophic form of intractable epilepsy, meaning her seizures are resistant to any kind of treatment. Due to the severity of her seizures and super refractory status epilepticus Savannah has a trach, feeding tube, a VNS (Vagus Nerve Stimulation) device, and a mediport. We've tried everything we could think of to control her seizures - more than 15 different anti-epileptic drugs, a ketogenic diet, CBD/THC treatment, VNS, IV steroids, IVIg infusions.... you name it. Gene therapy is our only chance to finally bring some relief to Savannah. We're holding onto that hope with all our strength and praying for a miracle. Despite everything she goes through, when Savannah isn't seizing, she is the sweetest and happiest girl you'll ever meet. She always has the biggest smile on her face and brings so much joy to those around her. She breathes normally, eats by mouth, and absolutely adores being around people - a true social butterfly! #servicedog #seizureresponsedog #servicedoglife #servicedogsoftiktok #dogsoftiktok #seizures #seizuresawareness #epilepsyawareness #smc1a #medicallycomplex #raredisease #genetherapy #specialneedschild #specialneed
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