Erin Rackham, PhD
Region: US
Sunday 12 July 2026 16:16:35 GMT
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mammabear_1973 :
are you doing cromolyn sodium and ketotifen now? I'm trying to assess whether it's an either or.
2026-08-16 12:22:59
3
✨ Missy :
I didn’t tolerate cromolyn sodium. The acid reflux was so bad 😭
2026-07-13 07:39:02
1
TheDumbShitISee :
Girl take it I’m on it and it’s helping so much I hate cromolyn
2026-07-13 00:50:05
2
Kuni :
what speciality is your provider out of curiosity
2026-08-21 05:10:32
1
Anna :
I love my Ketotifen! Eventually the sleepiness goes away.
2026-07-12 17:11:07
10
⚡ askme😶about💯myweeen ⚡86 :
this is why I wake up raging isn't it?😳
2026-07-13 14:21:01
1
Ashley :
Hi friend!! Did you start with one vial and build up to 6?
2026-07-12 20:40:46
0
DaynStarr :
Exhausting dosing schedule makes cromolyn hard. Start slow and low with Ketotifen at night. Worth the try! ✨
2026-07-21 16:57:16
1
Stephazona :
My doc put me on low dose naltrexone did you ever try that ?
2026-07-12 16:25:06
2
𝕵𝖊𝖓𝖓𝖎𝖋𝖊𝖗-𝕱𝖆𝖗𝖒𝖊𝖗 :
I've been trying to get anyone at my doctor's office to pay attention to me for about a year and had both attacks in the last month... I don't know what type of medicine I should ask for I have told them that, but I need something now I need a mast cell stabilizer....
2026-08-11 01:31:55
0
JaneAshley :
I’ve just started Cromylin yesterday so this gives me hope. What dose are you on each time? I’ve started at 100mg before meals.
2026-07-13 03:03:59
1
Ms Casias 🪶 🇺🇸 🆘 :
Ohhh I’m going to ask my doctor for it. Cromolyn makes me extremely tired for some reason.
2026-07-12 17:53:52
1
Gabriella Rojas :
Did you have any reaction with the generic? I did. And I want to try the name brand. I’m currently doing nasal spray and that helps
2026-07-12 19:54:27
0
V :
the guanfacine helped with adrenaline, irritation
2026-08-09 15:45:44
1
Betsysloane :
Do you wake up at night to take it?
2026-07-15 13:28:53
2
Nope :
One vial SIX TIMES A DAY??? woah wild dosing medication
2026-07-13 01:48:53
2
Nuckyduck :
Cromolyn changed my life. I haven't thrown up in weeks from food sensitivity.
2026-07-12 19:16:30
3
Chel𓇼 :
oh interesting ive been slacker with taking it and my sensory issues have been worsening, didn't know it could help that!
2026-07-13 04:31:25
1
Einsteinium44 :
mold?
2026-08-16 17:53:40
0
jamii1997 :
i was told to take cromolyn to have twice a day so should I be having 4 times a day
2026-07-25 02:23:19
0
chronically dysfunctional 2.0 :
I. trying to get a script filled and the insurance company won't cover it . super expensive
2026-08-14 04:09:52
0
Sheeep🍉 :
ketotifen is a good 'oh shit I'm having a reaction' med for me but it gives me a 24hr grumpy hangover
2026-08-10 10:36:36
0
V :
abilify causes mass cell to amplify.
2026-08-09 15:47:13
0
L :
I react so bad to it. It made me go into a 4 month flare of severe flushing etc. I tried to push through with it for 6 weeks and I only took 1/3 capsule once a day… lol. Never should have. Trying ketotifen but a bit Ergh about trying it.
2026-07-30 23:05:09
0
Clara Del Genio :
Hi Erin! I have developed MCAS from a chronic spinal CSF leak. I wonder if my story can help connect the dots on how these conditions work and are connected. Would love to connect :)
2026-07-12 17:12:58
0
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